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[患者叙事作为医学康复准备工具:www.krankheitserfahrungen.de网站上的“医学康复(Medizinische Reha)”]

[Patients' Narratives as a Tool to Prepare for Medical Rehabilitation: The Website "Medical Rehabilitation (Medizinische Reha)" at www.krankheitserfahrungen.de].

作者信息

Burbaum Christina, Peters Mutram, Metzner Gloria, Lucius-Hoene Gabriele, Bengel Jürgen

机构信息

Abteilung für Rehabilitationspsychologie und Psychotherapie, Institut für Psychologie, Albert-Ludwigs-Universität Freiburg.

出版信息

Rehabilitation (Stuttg). 2019 Aug;58(4):234-242. doi: 10.1055/a-0621-7721. Epub 2019 Feb 11.

Abstract

OBJECTIVE

The website "medical rehabilitation (Medizinische Reha)" at www.krankheitserfahrungen.de presents patients' experiences concerning medical rehabilitation and aims at supporting people in preparation for medical rehabilitation.

METHODS

Using purposeful sampling 38 former rehabilitation patients were selected. They took part in a guided narrative interview about their experiences concerning medical rehabilitation. Interview transcripts were coded and systematically aggregated based on Grounded Theory.

RESULTS

Under the heading "individuals (Personen)" individual experiences of each patient are portrayed on the website. Analysis revealed 8 categories of specific issues and subtopics. These topics are illustrated by original excerpts of the interviews as video, audio or text on the website. Topics are the way to and daily routine in rehabilitation, therapies and other offers of the clinic, family, profession, profits of the rehabilitation, the time afterwards, messages and recommendations. Patients mentioned obstacles and challenges as well as supporting experiences and advice.

CONCLUSION

The website provides free and barrier-free information about medical rehabilitation for prospective patients and professionals, exclusively focusing on patients' perspectives.

摘要

目的

www.krankheitserfahrungen.de网站上的“医学康复(Medizinische Reha)”板块展示了患者在医学康复方面的经历,旨在帮助人们为医学康复做好准备。

方法

采用目的抽样法选取了38名曾接受康复治疗的患者。他们参与了一次关于医学康复经历的引导式叙事访谈。访谈记录根据扎根理论进行编码和系统汇总。

结果

在“个人(Personen)”标题下,网站展示了每位患者的个人经历。分析揭示了8类具体问题和子主题。这些主题通过访谈的原始摘录以视频、音频或文本的形式在网站上呈现。主题包括康复的途径和日常生活、治疗方法及诊所的其他服务、家庭、职业、康复的益处、康复后的时间、信息和建议。患者提到了障碍和挑战以及支持性的经历和建议。

结论

该网站为潜在患者和专业人士提供了关于医学康复的免费且无障碍的信息,完全聚焦于患者的视角。

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