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出生体重低于1500克的学龄儿童家长的生活质量

[Quality of life of parents of school age children with a birth weight less than 1500 grams].

作者信息

Alcántara-Canabal Leticia, Martínez-Pérez Lucía, Gutiérrez-Alonso Sara, Fernández-Baizán Cristina, Méndez Marta

机构信息

Centro de Salud de Paulino Prieto, Área Sanitaria IV, Oviedo, España.

Unidad de Hospitalización de Psiquiatría, Hospital Universitario Central de Asturias, Oviedo, España.

出版信息

An Pediatr (Engl Ed). 2019 Sep;91(3):151-157. doi: 10.1016/j.anpedi.2018.10.013. Epub 2019 Feb 11.

Abstract

INTRODUCTION

The birth of a preterm child has a high family emotional cost. The aim of this study is to assess the quality of life of parents of children aged 5-7 years born prematurely (<1500g).

PARTICIPANTS AND METHODS

This is a cross-sectional study of a sample of parents of preterm infants admitted to a third level hospital in Spain between 2009 and 2011. Their infants weighed less than 1500g at birth, and were 5-7 years old at the moment of the study. Parents completed the Parental Stress Scale, Family Apgar, Zarit modified scale, and Graffar-Méndez Castellano method (1994). A total of 94 cases were analysed (40 girls and 54 boys).

RESULTS

All data passed normality assumptions. Results showed no gender, weight or gestational age differences in our sample on the Zarit modified scale, Parental Stress Scale, or by the Graffar method. Differences between boys and girls were found in the Family Apgar test. Also, the Graffar method and degree of familiar malfunction showed significant results. The parents of preterm children with developmental problems at the time of the study showed significant differences with respect to parents of children without these problems in the Family Apgar test and the Zarit modified scale.

CONCLUSIONS

The possible impact of the birth of a preterm child with less than 1500g of weight is not appreciated between 5 to 7 years of age, except for the differences found in the perception of family functionality and caregiver overload among parents of children with and without developmental alterations.

摘要

引言

早产婴儿的出生给家庭带来高昂的情感代价。本研究旨在评估出生时体重不足1500克的5 - 7岁儿童父母的生活质量。

参与者与方法

这是一项横断面研究,研究对象为2009年至2011年间入住西班牙一家三级医院的早产婴儿的父母样本。他们的婴儿出生时体重不足1500克,在研究时年龄为5 - 7岁。父母们完成了父母压力量表、家庭阿普加量表、扎里特修订量表以及格拉法尔 - 门德斯·卡斯特利亚诺方法(1994)。共分析了94个案例(40名女孩和54名男孩)。

结果

所有数据均符合正态性假设。结果显示,在扎里特修订量表、父母压力量表或格拉法尔方法方面,我们的样本在性别、体重或胎龄上没有差异。在家庭阿普加测试中发现了男孩和女孩之间的差异。此外,格拉法尔方法与家庭功能障碍程度显示出显著结果。在研究时,有发育问题的早产儿童的父母在家庭阿普加测试和扎里特修订量表方面与没有这些问题的儿童的父母存在显著差异。

结论

除了在有和没有发育改变的儿童的父母对家庭功能和照顾者负担的认知方面发现的差异外,在5至7岁时,体重不足1500克的早产儿童出生可能产生的影响并不明显。

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