Harishankar Krupa, Wong Milagros, Saldana Olga, Santa Cruz Janeth, Lecca Leonid, Munoz Maribel, Nelson Adrianne Katrina, Castro Arachu, Shin Sonya
1 Department of Obstetrics and Gynecology, Mt. Sinai Hospital, New York, NY, USA.
2 Socios en Salud, Partners in Health, Lima, Peru.
J Int Assoc Provid AIDS Care. 2019 Jan-Dec;18:2325958218824310. doi: 10.1177/2325958218824310.
As per the National HIV Program in Peru, the designation of a patient-elected treatment supporter is a requisite for starting antiretroviral therapy (ART). These individuals are expected to aid the patient in medical and social support. This qualitative study examines the interaction between treatment supporters and people living with HIV/AIDS (PLWHA) to elucidate key dynamics contributing to care. Twenty individual interviews with treatment supporters were analyzed alongside 5 group interviews: 2 groups of treatment supporters, 2 groups of PLWHA, and 1 group of community health workers. Findings characterized formal means of treatment support and informal emotional and instrumental support. Gradual transfer of treatment responsibilities from supporters to PLWHA was found to foster a sense of self-efficacy among PLWHA, and when paired with open communication and committed emotional support, created an ideal reciprocal relationship. However, lack of HIV-related knowledge among treatment supporters was detrimental. More training and systemic support for treatment supporters may optimize their role as informed participants in the care of PLWHA.
根据秘鲁国家艾滋病项目，指定一名患者自主选择的治疗支持者是开始抗逆转录病毒治疗（ART）的必要条件。这些人有望在医疗和社会支持方面帮助患者。这项定性研究考察了治疗支持者与艾滋病毒/艾滋病感染者（PLWHA）之间的互动，以阐明有助于护理的关键动态因素。对20名治疗支持者进行了个人访谈，并分析了5组访谈：2组治疗支持者、2组艾滋病毒/艾滋病感染者以及1组社区卫生工作者。研究结果描述了治疗支持的正式方式以及非正式的情感和工具性支持。发现治疗责任从支持者逐渐转移到艾滋病毒/艾滋病感染者身上，有助于增强艾滋病毒/艾滋病感染者的自我效能感，并且与开放沟通和坚定的情感支持相结合时，会形成一种理想的互惠关系。然而，治疗支持者缺乏与艾滋病毒相关的知识是有害的。为治疗支持者提供更多培训和系统性支持，可能会优化他们作为艾滋病毒/艾滋病感染者护理中知识渊博参与者的角色。
