School of Public Health and Social Work, Queensland University of Technology, Brisbane, QLD, Australia.
Queensland Bladder Cancer Initiative, Brisbane, Australia.
BJU Int. 2019 May;123 Suppl 5:10-18. doi: 10.1111/bju.14720. Epub 2019 Apr 23.
To conduct a systematic synthesis of the literature evaluating the use of the Internet and social media by people with bladder cancer (BCa) and their carers, and to synthesize the evidence on the quality of available online resources for patients with BCa.
We selected studies published between January 2000 and September 2018, written in the English language and meeting the inclusion criteria. Data sources included PubMed, PsycINFO, EMBASE, Web of Science and Scopus.
A total of 15 studies were included in the review. Four studies explored patterns of Internet use among patients with BCa, five studies investigated social media use related to BCa and six studies evaluated the quality of online resources available for patients with BCa. Evidence in all these three dimensions was limited in its ability to establish rigorously if use of the Internet, social media and online resources for BCa is effective in improving the care outcomes for patients with BCa.
Our review emphasizes the forgotten status of BCa by establishing that, despite its high global incidence, it remains underrepresented in the building of evidence on patient information needs and the possible role of online spaces. Our synthesis establishes that further research is needed to examine the full impact of online information and social media use on the health management of people with BCa.
系统综合评估膀胱癌（BCa）患者及其照顾者使用互联网和社交媒体的文献，并综合评估现有 BCa 患者在线资源质量的证据。
我们选择了 2000 年 1 月至 2018 年 9 月期间发表的、符合纳入标准的英文文献进行研究。数据来源包括 PubMed、PsycINFO、EMBASE、Web of Science 和 Scopus。
共纳入 15 项研究。其中 4 项研究探讨了 BCa 患者的互联网使用模式，5 项研究调查了与 BCa 相关的社交媒体使用情况，6 项研究评估了可供 BCa 患者使用的在线资源的质量。所有这三个方面的证据都难以严格确定 BCa 患者使用互联网、社交媒体和在线资源是否能有效改善患者的护理结局。
我们的综述强调了 BCa 被忽视的地位，尽管它在全球的发病率很高，但在确定患者信息需求的证据和在线空间可能发挥的作用方面，BCa 的代表性仍然不足。我们的综合研究表明，需要进一步研究以检验在线信息和社交媒体使用对 BCa 患者健康管理的全面影响。
