Quintana Yuri, Fahy Darren, Crotty Bradley, Jain Ruchira, Kaldany Eli, Gorenberg Maxwel, Lipsitz Lewis, Engorn Diane, Rodriguez Jorge, Orfanos Alex, Bajracharya Adarsha, Henao Juan, Adra May, Skerry David, Slack Warner V, Safran Charles
Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
Harvard Medical School, Boston, MA.
AMIA Annu Symp Proc. 2018 Dec 5;2018:932-941. eCollection 2018.
With an increasingly elderly population, families are finding it increasingly challenging to coordinate care for their older family members. This paper reports on the findings of InfoSAGE, an online private social network that has tools for communication and care coordination for elders and their families. The InfoSAGE system has 257 registered users; 52 of these opted into an in-depth longitudinal study. A descriptive analysis of these early participants, the online family networks, and barriers to participation that were encountered are presented.
随着人口老龄化日益加剧，家庭发现协调照顾年长家庭成员的难度越来越大。本文报告了InfoSAGE的研究结果，InfoSAGE是一个在线私人社交网络，拥有供老年人及其家人进行沟通和护理协调的工具。InfoSAGE系统有257名注册用户；其中52人选择参与一项深入的纵向研究。本文对这些早期参与者、在线家庭网络以及遇到的参与障碍进行了描述性分析。
