NHMRC Clinical Trials Centre, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia.
Department of Nephrology, Western Health, Sunshine Hospital, Melbourne, Victoria, Australia.
Nephrology (Carlton). 2020 Jan;25(1):14-21. doi: 10.1111/nep.13577. Epub 2019 May 1.
Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are increasingly used in research to quantify how patients feel and function, and their experiences of care, however, knowledge of their utilization in routine nephrology is limited.
The Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) PROMs working group conducted a prospective cross-sectional survey of PROMs/PREMs use among renal 'parent hospitals'. One survey per hospital was completed (August-November 2017). Descriptive statistics reported type and frequency of measures used and purpose of use.
Survey response rate was 100%. Fifty-five of 79 hospitals (70%) used at least one PROMs or PREMs for specific patient groups. PROMs were more likely to be collected from patients receiving comprehensive conservative care (45% of hospitals) than dialysis patients (32%, 31% and 28% of hospitals for home haemodialysis, peritoneal dialysis and facility dialysis, respectively). Few renal transplanting hospitals (3%) collected PROMs. The Integrated Palliative Outcome Scale-Renal (IPOS-Renal) (40% of units), and the Euro-Qol (EQ-5D-5 L) (25%), were most frequently used. The main reason for collecting PROMs was to inform clinical care (58%), and for PREMs was to fulfil private dialysis/hospital provider requirements (25%). The most commonly reported reason for not using PROMs in 24 hospitals was insufficient staff resources (79%). Sixty-two hospitals (78%) expressed interest in participating in a registry-based PROMs trial.
Many renal hospitals in Australia and New Zealand collect PROMs and/or PREMs as part of clinical care with use varying by treatment modality. Resources are a key barrier to PROMs use.
患者报告的结局测量（PROMs）和患者报告的体验测量（PREMs）越来越多地用于研究中，以量化患者的感受和功能以及他们的护理体验，然而，关于它们在常规肾病学中的应用的知识有限。
澳大利亚和新西兰透析和移植登记处（ANZDATA）PROMs 工作组对肾脏“母体医院”中 PROMs/PREMs 的使用情况进行了前瞻性横断面调查。每家医院完成一份调查（2017 年 8 月至 11 月）。描述性统计报告了使用的措施类型和频率以及使用目的。
调查回复率为 100%。79 家医院中有 55 家（70%）为特定患者群体使用了至少一种 PROMs 或 PREMs。综合保守治疗患者（45%的医院）比透析患者（分别为 32%、31%和 28%的医院）更有可能接受 PROMs 收集。少数肾移植医院（3%）收集 PROMs。综合姑息治疗结局量表-肾脏（IPOS-Renal）（40%的单位）和欧洲五维健康量表-5 维度简表（EQ-5D-5L）（25%）是最常用的。收集 PROMs 的主要原因是为了为临床护理提供信息（58%），而收集 PREMs 的主要原因是为了满足私人透析/医院提供者的要求（25%）。24 家医院未使用 PROMs 的最常见原因是缺乏足够的员工资源（79%）。62 家医院（78%）表示有兴趣参与基于登记的 PROMs 试验。
澳大利亚和新西兰的许多肾脏医院将 PROMs 和/或 PREMs 作为临床护理的一部分进行收集，使用情况因治疗方式而异。资源是 PROMs 使用的一个关键障碍。
