Evén Gudrun, Spaak Jonas, von Arbin Magnus, Franzén-Dahlin Åsa, Stenfors Terese
Department of Clinical Sciences, Karolinska Institutet, Stockholm, Sweden,
Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
J Multidiscip Healthc. 2019 Feb 14;12:137-148. doi: 10.2147/JMDH.S186388. eCollection 2019.
Person-centered care (PCC) appears particularly suitable for patients with complex diseases and in multidisciplinary care. However, previous research tends to focus on each profession and condition separately.
We studied how health care professionals (HCPs) understand PCC, and whether their clinical practice is aligned with their theoretical understanding, when starting clinical practice at a novel multidisciplinary clinic.
In total, 16 semi-structured interviews with HCPs and 31 non-participatory observations of outpatient meetings and other activities at the clinic such as team meetings were conducted at a multidisciplinary, integrated outpatient clinic in Sweden. All patients had simultaneous diabetes mellitus, chronic kidney disease and established cardiovascular disease. The clinic employed a PCC approach. Data were analyzed using an inductive thematic approach.
Two key findings emerged. First, PCC requires a holistic view of the patient at all times during care, with everything focused on the patient. This requires that the HCPs know the patient well enough as an individual to be able to tailor the care together with them. Second, working with a PCC philosophy leads to transformed roles for HCPs in patient meetings, with more active involvement by the patient and often also their next of kin. The observations, in comparison with the interviews, showed that not all HCPs applied their views on PCC in patient meetings. Observations showed that some patient meetings were less person-centered than others, potentially due to stress or lack of time.
PCC require HCPs to have a holistic view of the patients and a deeper understanding of their situation, as individuals. Working with PCC also leads to a more coaching, supportive role of the HCPs.
以患者为中心的护理(PCC)似乎特别适合患有复杂疾病以及接受多学科护理的患者。然而,以往的研究往往分别关注每个专业和病情。
我们研究了医疗保健专业人员(HCPs)如何理解PCC,以及在一家新型多学科诊所开始临床实践时,他们的临床实践是否与理论理解相一致。
在瑞典一家多学科综合门诊诊所,我们总共对HCPs进行了16次半结构化访谈,并对门诊会议以及诊所的其他活动(如团队会议)进行了31次非参与式观察。所有患者均同时患有糖尿病、慢性肾病和已确诊的心血管疾病。该诊所采用PCC方法。数据采用归纳主题分析法进行分析。
出现了两个关键发现。首先,PCC要求在护理过程中的所有时间都对患者有一个整体的看法,一切都以患者为中心。这要求HCPs充分了解患者个体,以便能够与他们一起量身定制护理方案。其次,以PCC理念开展工作会使HCPs在患者会议中的角色发生转变,患者及其近亲的参与度会更高且更积极。与访谈相比,观察结果表明并非所有HCPs都在患者会议中应用他们对PCC的看法。观察结果显示,一些患者会议的以患者为中心程度低于其他会议,这可能是由于压力或时间不足所致。
PCC要求HCPs对患者有整体看法,并更深入地了解他们作为个体的情况。采用PCC还会使HCPs发挥更具指导和支持性的作用。