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路易体痴呆协会卓越研究中心计划:首次会议记录。

Lewy Body Dementia Association's Research Centers of Excellence Program: Inaugural Meeting Proceedings.

机构信息

Lewy Body Dementia Association, Lilburn, USA.

University of Florida, Gainesville, USA.

出版信息

Alzheimers Res Ther. 2019 Mar 13;11(1):23. doi: 10.1186/s13195-019-0476-1.

Abstract

The first Lewy Body Dementia Association (LBDA) Research Centers of Excellence (RCOE) Investigator's meeting was held on December 14, 2017, in New Orleans. The program was established to increase patient access to clinical experts on Lewy body dementia (LBD), which includes dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD), and to create a clinical trials-ready network. Four working groups (WG) were created to pursue the LBDA RCOE aims: (1) increase access to high-quality clinical care, (2) increase access to support for people living with LBD and their caregivers, (3) increase knowledge of LBD among medical and allied (or other) professionals, and (4) create infrastructure for a clinical trials-ready network as well as resources to advance the study of new therapeutics.

摘要

第一届 Lewy 体痴呆协会(LBDA)卓越研究中心(RCOE)调查员会议于 2017 年 12 月 14 日在新奥尔良举行。该计划旨在增加患者与 Lewy 体痴呆(LBD)临床专家的接触机会,包括路易体痴呆(DLB)和帕金森病痴呆(PDD),并建立一个准备进行临床试验的网络。成立了四个工作组(WG)来实现 LBDA RCOE 的目标:(1)增加获得高质量临床护理的机会,(2)增加为 LBD 患者及其护理人员提供支持的机会,(3)增加医疗和相关(或其他)专业人员对 LBD 的认识,以及(4)建立一个准备进行临床试验的网络的基础设施,并提供资源以推进新疗法的研究。

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