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成人风湿病专家对生育计划咨询和护理的看法:一项定性研究。

Perspectives of Adult Rheumatologists Regarding Family Planning Counseling and Care: A Qualitative Study.

机构信息

University of Pittsburgh, Pittsburgh, Pennsylvania.

Duke University Medical Center, Durham, North Carolina.

出版信息

Arthritis Care Res (Hoboken). 2020 Mar;72(3):452-458. doi: 10.1002/acr.23872.

Abstract

OBJECTIVE

Little is known about whether and how rheumatologists provide family planning counseling and reproductive health care (FPCC) to reproductive-age women with rheumatic diseases. This qualitative study sought to assess rheumatologists' perspectives, attitudes, and practices regarding FPCC.

METHODS

Semistructured interviews were conducted with a geographically diverse US sample of rheumatologists (n = 12). Interviews were transcribed verbatim, and a code book was inductively developed based on transcript content. Two coders applied the code book to all transcripts, and coding differences were adjudicated to full agreement. The finalized coding was used to conduct a thematic analysis.

RESULTS

Six themes were identified across interviews. Rheumatologists said that they 1) feel responsible for providing some FPCC to patients, 2) experience tension between respecting patients' autonomy and their own anxieties about managing high-risk pregnancies, 3) view patient-initiated conversations as FPCC facilitators, and they regard lack of guidelines and the presence of competing clinical priorities as barriers to FPCC, 4) are reluctant to prescribe contraception, 5) desire greater access to resources to help guide FPCC, and 6) recognize the benefits of multidisciplinary collaboration with gynecologists.

CONCLUSION

Rheumatologists feel a sense of responsibility to provide some aspects of FPCC to reproductive-age female patients. However, their own apprehensions about managing complicated pregnancies may negatively influence how they advise patients about pregnancy planning or avoidance. Rheumatologists do not prescribe contraception but rarely refer patients to gynecologists for contraceptive care. Future work should focus on eliminating barriers and identifying solutions that support rheumatologists' efforts to provide high-quality FPCC to patients.

摘要

目的

关于风湿病专家是否以及如何为患有风湿性疾病的育龄期女性提供计划生育咨询和生殖健康护理(FPCC),目前知之甚少。本定性研究旨在评估风湿病专家对 FPCC 的观点、态度和实践。

方法

对美国各地具有不同地理位置的风湿病专家(n=12)进行半结构式访谈。访谈内容逐字记录,并根据转录内容制定编码手册。两位编码员将编码手册应用于所有转录本,并对编码差异进行裁决以达成完全一致。最终的编码用于进行主题分析。

结果

在访谈中确定了六个主题。风湿病专家表示,他们 1)认为有责任为患者提供一些 FPCC,2)在尊重患者自主权和对管理高危妊娠的自身焦虑之间感到紧张,3)将患者发起的对话视为 FPCC 的促进因素,并且他们认为缺乏指南和存在竞争的临床重点是 FPCC 的障碍,4)不愿意开避孕药,5)渴望获得更多资源来帮助指导 FPCC,6)认识到与妇科医生开展多学科合作的好处。

结论

风湿病专家感到有责任为育龄期女性患者提供一些 FPCC。然而,他们对管理复杂妊娠的担忧可能会对他们为患者提供有关妊娠计划或避免妊娠的建议产生负面影响。风湿病专家不开避孕药,但很少将患者转介给妇科医生进行避孕护理。未来的工作应重点消除障碍,并确定支持风湿病专家为患者提供高质量 FPCC 的解决方案。

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