Scriven Heather, Doherty Darren P, Ward Elizabeth C
Community and Allied Health, St George Hospital, South West Hospital and Health Service, 1 Victoria Street, St George, Queensland, Australia
Interdisciplinary Persistent Pain Management Centre, Gold Coast Hospital and Health Service, 2 Investigator Drive, Robina, Queensland, Australia
Rural Remote Health. 2019 Mar;19(1):4710. doi: 10.22605/RRH4710. Epub 2019 Mar 19.
Individuals living in rural/remote areas have recognised barriers to specialist services for persistent pain management. Although there is current evidence to support the use of telehealth to deliver individual pain management support, there is minimal evidence to support the use of pain management programs delivered within a group model, using telehealth. The aim of the present research was to perform a formative evaluation of a persistent pain management program implemented using a multisite telehealth group model, and to examine consumer perceptions.
The Manage Your Pain multisite telehealth group program was developed as a modified hub-and-spoke model. The model allowed participants from multiple rural/remote 'spoke' sites in Queensland, Australia to access four 2-hour specialist persistent pain management sessions from a metropolitan interdisciplinary persistent pain management centre ('hub' site, 491-1009 km from spoke sites), and simultaneously enable real-time access/interactions between participants at each of the spoke sites. Twenty-one individuals living with persistent pain participated in one of five multisite telehealth groups over the 10-month period. All participants completed standard pain scales before and after the pain management program, including Chronic Pain Acceptance Questionnaire 20 (CPAQ20), Brief Pain Inventory (BPI), Depression Anxiety Stress Scale (DASS 21), Pain Self Efficacy Questionnaire (PSEQ) and the Participant Reported Outcomes Measurement Information System (PROMIS). The Patient Impression of Change Scale (PICS), a telehealth perceptions survey, and a semi-structured telephone interview were completed post-program.
Results revealed significant (p<0.05) improvements in the activity subscale and total score of the CPAQ, with 6 (30%) showing reliable improvement (90% confidence interval), indicating higher levels of activity engagement and pain acceptance after the program. Four (19%) participants made reliable improvement on the BPI interference. Post-program, the PICS revealed 65% of participants reported improvements in overall function, 61% indicated improved mood, 57% reported improved physical activity and 50% had some improvement in pain. Post-program, less than 10% of participants reported having technical (audio, visual) issues that had impacted on their sessions, and more than 90% found telehealth to be comfortable, convenient and would consider using it for their healthcare in the future. Post-program, most participants felt they had connected and were in a shared health experience with other group members through the multisite telehealth model. The interviews revealed three main themes: 'group experiences', which involved comments relating to the dynamics of the group and the shared experience; 'telehealth accessibility', which pertained to perceptions of the telehealth model for accessing specialist services; and 'limitations and concerns', where participants spoke of possible improvements to the program delivery model.
Results confirmed that participants received benefit from the pain management program and that they had positive perceptions of receiving the service using a telehealth model. The present findings provide positive data to support using telehealth to deliver specialist persistent pain management for individuals who face accessibility issues in rural and remote communities. The model also demonstrated that positive elements of group treatment can be achieved through telehealth group models.
生活在农村/偏远地区的人们在获得持续疼痛管理的专科服务方面存在公认的障碍。尽管目前有证据支持使用远程医疗提供个体疼痛管理支持,但几乎没有证据支持使用远程医疗在群体模式下开展疼痛管理项目。本研究的目的是对采用多站点远程医疗群体模式实施的持续疼痛管理项目进行形成性评估,并考察消费者的看法。
“管理你的疼痛”多站点远程医疗群体项目是作为一种改良的中心辐射模式开发的。该模式使来自澳大利亚昆士兰州多个农村/偏远“辐条”站点的参与者能够从一个大都市的跨学科持续疼痛管理中心(“中心”站点,距辐条站点491 - 1009公里)参加四次为时两小时的专科持续疼痛管理课程,同时使各辐条站点的参与者能够实时交流互动。在10个月的时间里,21名患有持续疼痛的个体参加了五个多站点远程医疗群体中的一个。所有参与者在疼痛管理项目前后都完成了标准疼痛量表的测评,包括慢性疼痛接受问卷20(CPAQ20)、简明疼痛量表(BPI)、抑郁焦虑压力量表(DASS 21)、疼痛自我效能问卷(PSEQ)以及患者报告结局测量信息系统(PROMIS)。项目结束后完成了患者变化印象量表(PICS)、一项远程医疗看法调查以及一次半结构化电话访谈。
结果显示,CPAQ的活动子量表和总分有显著(p<0.05)改善,6名(30%)参与者有可靠改善(90%置信区间),表明项目实施后活动参与度和疼痛接受度更高。4名(19%)参与者在BPI干扰项上有可靠改善。项目结束后,PICS显示65%的参与者报告整体功能有改善,61%表示情绪改善,57%报告身体活动改善,50%的疼痛有一定改善。项目结束后,不到10%的参与者报告存在影响其课程的技术(音频、视频)问题,超过90%的人认为远程医疗舒适、方便,并会考虑在未来的医疗保健中使用它。项目结束后,大多数参与者觉得他们通过多站点远程医疗模式与其他小组成员建立了联系并共同经历了健康体验。访谈揭示了三个主要主题:“小组体验”,涉及与小组动态和共同体验相关的评论;“远程医疗可及性”,与通过远程医疗模式获得专科服务的看法有关;“局限性和担忧”,参与者谈到了项目实施模式可能的改进之处。
结果证实参与者从疼痛管理项目中受益,并且他们对使用远程医疗模式接受服务有积极看法。本研究结果提供了积极数据,支持使用远程医疗为农村和偏远社区面临可及性问题的个体提供专科持续疼痛管理。该模式还表明,通过远程医疗群体模式可以实现小组治疗的积极效果。