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脑性瘫痪儿童及其家长对强化语言治疗效果和可接受性的看法。

Views of children with cerebral palsy and their parents on the effectiveness and acceptability of intensive speech therapy.

机构信息

Institute of Health and Society, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle University, Newcastle Upon Tyne, UK.

Department of Nursing, Midwifery & Health, Northumbria University, Newcastle Upon Tyne, UK.

出版信息

Disabil Rehabil. 2020 Oct;42(20):2935-2943. doi: 10.1080/09638288.2019.1577504. Epub 2019 Mar 29.

DOI:10.1080/09638288.2019.1577504
PMID:30925074
Abstract

To understand children and parents' views of the effectiveness and acceptability of intensive dysarthria therapy. Twenty-two children with cerebral palsy and dysarthria joined a pilot RCT comparing intensive therapy and usual care. Children ( = 11) allocated to dysarthria therapy comprising three 40-minute sessions per week for six weeks and their parents ( = 11) were interviewed two weeks before and six weeks after therapy. Interviews were transcribed verbatim and analysed thematically. Analysis revealed five themes: Motivations, My new voice; The new me; I can do more; Success rooted in therapy design. Children had received little therapy for speech and were keen to improve intelligibility. Overall, therapy was viewed as effective. Participants described changes in children's speech production, which they associated with increased speech intelligibility. Children were described as more confident following the therapy, to have more successful conversations, with a wider range of partners in more environments, thereby increasing their social participation. The programme was viewed as acceptable, despite its intensity, due to the short term commitment and wider benefits for the child. Parents valued the organised structure and individualisation of the programme and inclusion in the therapy process. Families found the intervention acceptable and effective. A definitive trial of its clinical effectiveness is warranted.Implications for rehabilitationChildren with cerebral palsy who have dysarthria and their parents reported that intensive speech therapy focussing on creating a stronger voice and a steady speech rate increased the clarity of children's voice and the intelligibility of their speech.Therapy may have additional benefits for children's self-confidence and social participation.The programme of therapy comprising three sessions per week for six weeks was seen as manageable by families in view of the results achieved.

摘要

为了了解儿童和家长对强化构音障碍治疗的有效性和可接受性的看法。22 名患有脑瘫和构音障碍的儿童参加了一项比较强化治疗和常规护理的试点 RCT。接受构音障碍治疗的儿童(n=11)每周接受 3 次 40 分钟的治疗,持续 6 周,他们的家长(n=11)在治疗前两周和治疗后六周接受了访谈。访谈记录被逐字转录,并进行了主题分析。分析揭示了五个主题:动机,我的新声音;新的我;我能做更多;成功根植于治疗设计。这些孩子接受的言语治疗很少,他们非常渴望提高可理解度。总的来说,治疗被认为是有效的。参与者描述了儿童言语产生的变化,他们将这些变化与言语可理解度的提高联系起来。治疗后,孩子们被描述为更自信,能进行更成功的对话,与更多环境中的更多伙伴进行交流,从而增加他们的社会参与度。尽管治疗强度很大,但由于治疗时间短,对孩子的整体益处大,该方案被认为是可以接受的。家长们重视治疗计划的组织结构和个体化,并重视他们参与治疗过程。家庭发现干预措施是可以接受和有效的。有必要对其临床效果进行确定性试验。康复的意义患有脑瘫和构音障碍的儿童及其家长报告说,以创建更有力的声音和稳定的语速为重点的强化言语治疗提高了儿童声音的清晰度和言语的可理解度。治疗可能对儿童的自信心和社会参与度有额外的益处。考虑到治疗结果,每周 3 次、持续 6 周的治疗方案被家庭认为是可以管理的。

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