Department of Physiotherapy, Podiatry and Prosthetics and Orthotics, La Trobe University, Bundoora, Victoria, Australia.
School of Psychology and Public Health, La Trobe University, Bundoora, Victoria, Australia.
Disabil Rehabil. 2020 Dec;42(24):3475-3480. doi: 10.1080/09638288.2019.1597176. Epub 2019 Apr 11.
To explore the experiences of physiotherapists delivering community-based progressive resistance training for people with Prader-Willi syndrome (PWS). Participants in this qualitative study were fifteen physiotherapists (13 female) who had supervised 14 young adults with PWS to complete a progressive resistance training program, twice per week for 10 weeks. Semi-structured interviews with the physiotherapists were audio-recorded and transcribed verbatim. Interview transcripts were checked for accuracy by the physiotherapists. Data were analysed using thematic analysis with an inductive approach and data were managed using NVivo software. Development of positive rapport between physiotherapists and people with PWS emerged as the critical factor. Components of developing positive rapport with a person with PWS included clear communication, adaptability in approach, fostering independence in the person with PWS, and motivating the person by developing confidence. Creating a routine, empowering the people with PWS to take ownership of their progress and developing confidence made continued participation in exercise by the people with PWS more likely. Our findings highlight the importance of developing rapport with people with PWS to facilitate their participation in exercise. Physiotherapist attributes and skills such as adaptability and communication positively influence participation in community-based exercise for people with PWS. Implications for rehabilitationThe critical factor for maximising the participation of people with PWS in high-intensity exercise is the development of positive rapport by the physiotherapistDevelopment of positive rapport was facilitated by therapist adaptability and clear communication.People with PWS might be motivated to exercise by developing their confidence and fostering their independence.
探讨物理治疗师在社区为普拉德-威利综合征(PWS)患者提供渐进式抗阻训练的经验。本研究采用定性方法,共招募了 15 名物理治疗师(13 名女性),他们监督 14 名成年 PWS 患者完成了一项渐进式抗阻训练计划,每周两次,共 10 周。对物理治疗师进行了半结构化访谈,并进行了逐字转录。访谈记录由物理治疗师检查准确性。使用主题分析方法进行数据分析,采用归纳法,使用 NVivo 软件管理数据。物理治疗师与 PWS 患者之间建立积极融洽关系是关键因素。与 PWS 患者建立融洽关系的要素包括清晰的沟通、方法的适应性、培养 PWS 患者的独立性、通过建立信心激励患者。制定常规、赋予 PWS 患者对其进展的所有权并增强其信心,使他们更有可能继续参与运动。我们的研究结果强调了与 PWS 患者建立融洽关系以促进他们参与运动的重要性。物理治疗师的特质和技能,如适应性和沟通能力,对 PWS 患者参与社区运动有积极影响。
最大限度地提高 PWS 患者参与高强度运动的关键因素是物理治疗师建立积极融洽关系。治疗师的适应性和清晰的沟通促进了融洽关系的建立。通过增强信心和培养独立性,患者可能会受到激励而进行运动。