Lundquist Debra M, Berry Donna L, Boltz Marie, DeSanto-Madeya Susan A, Grace Pamela J
Massachusetts General Hospital.
Dana-Farber Cancer Institute.
Oncol Nurs Forum. 2019 May 1;46(3):329-337. doi: 10.1188/19.ONF.329-337.
To describe and interpret the lived experiences of young women with advanced breast cancer.
PARTICIPANTS & SETTING: 12 women, aged 25-39 years with advanced breast cancer, were recruited from private Facebook groups for women with breast cancer.
Van Manen's hermeneutic phenomenologic method was used. Data were collected through one or more semi-structured interviews over a six-month period. Analysis was conducted using NVivo, version 11.
The participants' multidimensional experiences were described by the overarching theme of wearing the mask of wellness in the presence of life-threatening illness.
This study provides insight into the experiences of young women living with advanced breast cancer. Because these women may not appear ill to the general population, their needs and struggles are not well understood. The results of this study can be a baseline for additional research and clinical interventions.
描述并阐释患有晚期乳腺癌的年轻女性的生活经历。
从面向乳腺癌女性的私人脸书群组中招募了12名年龄在25至39岁之间的晚期乳腺癌女性。
采用了范曼的诠释现象学方法。在六个月的时间里通过一次或多次半结构化访谈收集数据。使用NVivo 11版本进行分析。
参与者的多维经历通过在危及生命的疾病面前戴着健康面具这一总体主题得以描述。
本研究深入了解了患有晚期乳腺癌的年轻女性的经历。由于这些女性在普通人群中可能看起来没有生病，她们的需求和挣扎并未得到充分理解。本研究结果可为进一步的研究和临床干预提供基线。
