University Hospital for Children and Adolescents, Centre for Paediatric Research, Leipzig.
Drug Safety Center and Department of Clinical Pharmacy, Leipzig University, Leipzig.
Epileptic Disord. 2019 Apr 1;21(2):197-205. doi: 10.1684/epd.2019.1048.
Epilepsy is a life-changing disease, and patients with epilepsy may face a number of issues. Paediatricians and general practitioners are often the first to be asked for advice. This cross-sectional study was performed to gain information on the knowledge and experiences of paediatricians and general practitioners on epilepsy. From September 2015 to July 2017, paediatricians and general practitioners in Leipzig, Germany, were asked to take part in a face-to-face interview. Overall, 40 paediatricians and 60 general practitioners participated in the study. A total of 99/100 (99%) kept emergency medication available and 96/100 (96%) would administer it during a seizure. Also, 40/40 (100%) of the paediatricians and 34/60 (57%) of the general practitioners recommended that non-professionals should administer emergency medication, and 18/40 (45%) of the paediatricians and 35/60 (58%) of the general practitioners would put an object in the patient's mouth during a seizure. With regards to safety precautions, paediatricians mentioned the risks associated with swimming (30/40; 75%) and the potential of falling from a height (23/40; 58%), whereas general practitioners focused on being around vehicles including driving regulations (43/60; 72%). Only 5/60 (8%) of the general practitioners advised that precautions should be taken during swimming. Fatigue/exhaustion was the most common adverse drug event associated with long-term anticonvulsive therapy mentioned by paediatricians (13/40; 33%) and general practitioners (27/60; 45%). Of all the participants, 23/100 (23%) recommended epilepsy training programmes for patients and families, however, none were able to name a specific programme. Nearly half of the general practitioners did not recommend the use of rescue medication by non-professionals. This measure, however, can prevent the occurrence of prolonged non-treatable seizures. Both paediatricians and general practitioners should bear in mind that placing an object in the mouth during a seizure should be avoided due to the risk of additional injury. To reduce the risk of drowning, physicians should recommend safety precautions during swimming. Information on epilepsy training programmes for patients and families should be diffused to all physicians taking care of patients with epilepsy.
癫痫是一种改变生活的疾病，癫痫患者可能会面临许多问题。儿科医生和全科医生通常是首先被咨询的人。本横断面研究旨在了解儿科医生和全科医生对癫痫的认识和经验。 2015 年 9 月至 2017 年 7 月，德国莱比锡的儿科医生和全科医生应邀参加面对面访谈。共有 40 名儿科医生和 60 名全科医生参加了这项研究。共有 99/100（99%）名医生备有急救药物，96/100（96%）名医生会在癫痫发作时给药。此外，40/40（100%）名儿科医生和 34/60（57%）名全科医生建议非专业人员给药，18/40（45%）名儿科医生和 35/60（58%）名全科医生会在癫痫发作时将物体放入患者口中。关于安全预防措施，儿科医生提到与游泳相关的风险（30/40；75%）和从高处坠落的风险（23/40；58%），而全科医生则关注周围的车辆，包括驾驶规则（43/60；72%）。只有 5/60（8%）名全科医生建议游泳时应采取预防措施。疲劳/疲惫是儿科医生（13/40；33%）和全科医生（27/60；45%）提到的与长期抗惊厥治疗相关的最常见不良药物事件。所有参与者中有 23/100（23%）建议为患者及其家属提供癫痫培训计划，但没有人能够说出具体的计划。近一半的全科医生不建议非专业人员使用急救药物。然而，这种措施可以防止长时间无法治疗的癫痫发作的发生。儿科医生和全科医生都应该记住，在癫痫发作时应避免将物体放入口中，因为这会增加受伤的风险。为了降低溺水风险，医生应在游泳时建议采取安全预防措施。应向所有照顾癫痫患者的医生传播有关癫痫患者及其家属培训计划的信息。
