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当癌症医护人员成为癌症患者时,无知是福,还是知识就是力量?

Is ignorance bliss, or is knowledge power? When cancer healthcare professionals become cancer patients.

机构信息

Graduate School of Health, University of Technology Sydney, Sydney, New South Wales, Australia.

Private Practice, Headway Health, Sydney, New South Wales, Australia.

出版信息

Eur J Cancer Care (Engl). 2019 Jul;28(4):e13066. doi: 10.1111/ecc.13066. Epub 2019 Apr 24.

Abstract

Cancer healthcare professionals who are diagnosed with cancer enter the patient journey with considerable illness-specific and healthcare expertise, which may influence the nature of their experience. Insights gained from having personal cancer experience may also lead to changes in professionals' subsequent clinical practice. This study explored cancer professional-patients' experiences of their own cancer diagnosis, changes in practice, and recommendations for cancer care improvements. Participants were current or former cancer healthcare professionals who had ever received a cancer diagnosis. Semi-structured interviews were conducted with 26 participants. Thematic analysis with an inductive approach was used for data analysis. Cancer professional-patients faced unique needs, benefits and disadvantages due to their professional background, which both aided and marred their personal cancer experience. Individuals reported subjective practical and emotional-related improvements in their clinical practice, although adverse emotional consequences upon returning to work were also prevalent. Care recommendations highlighted the importance of communication skills training for professionals, integrating psychological support, and providing patient-centred care. In order to provide optimal care for cancer professional-patients, providers must acknowledge their distinct challenges. Findings may help to foster improvements in cancer care practices through developing guidelines for treating cancer professional-patients, and as part of narrative-based medicine.

摘要

癌症医疗保健专业人员在被诊断出患有癌症后,会凭借相当的疾病特异性和医疗保健专业知识进入患者的治疗旅程,这可能会影响他们的体验性质。从个人癌症经历中获得的见解也可能导致专业人员随后的临床实践发生变化。本研究探讨了癌症专业患者自身癌症诊断、实践变化的体验,以及对改善癌症护理的建议。参与者是目前或曾经的癌症医疗保健专业人员,他们曾被诊断出患有癌症。对 26 名参与者进行了半结构化访谈。采用归纳法的主题分析进行数据分析。由于癌症专业人员的专业背景,他们在个人癌症经历中面临独特的需求、获益和劣势,这既对他们的个人经历有所帮助,也带来了一些阻碍。个人报告称,他们的临床实践在主观的实际和情感相关方面有所改善,尽管返回工作岗位后也普遍存在不良的情绪后果。护理建议强调了对专业人员进行沟通技巧培训、整合心理支持以及提供以患者为中心的护理的重要性。为了为癌症专业患者提供最佳护理,医护人员必须认识到他们的独特挑战。研究结果可能有助于通过制定治疗癌症专业患者的指南来促进癌症护理实践的改善,并作为叙事医学的一部分。

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