Richmond Al, Aguilar-Gaxiola Sergio, Perez-Stable Eliséo J, Menon Usha, Hughes-Halbert Chanita, Watson Karriem S, Greer-Smith Regina, Clyatt Courtney, Tobin Jonathan N, Wilkins Consuelo H
1Community Campus Partnerships for Health, Raleigh, NC 27605 USA.
2Clinical Internal Medicine, School of Medicine, University of California, Davis, Sacramento, CA 95817 USA.
BMC Proc. 2019 Apr 19;13(Suppl 3):3. doi: 10.1186/s12919-019-0164-y. eCollection 2019.
To address an urgent need to advance the field of community engaged research, faculty at Vanderbilt University Medical Center and Meharry Medical College organized the national meeting "Advancing the Science of Community Engaged Research (CEnR): Innovative & Effective Methods of Stakeholder Engagement in Translational Research, Washington, DC September 14-15, 2017 (See Additional file 1). These meetings brought together a diverse group of stakeholders to share community engaged research evidence and practical knowledge for implementing new and enhancing existing research programs. The conference series' goals were: 1) to expand the scientific basis for the community engaged research field by convening researchers, community partners, patient advocacy organizations, and others to share innovative methods and strategies; 2) to engage community representatives and patient advocates in the development of new approaches in community engaged research by meaningfully involving them in the planning, as speakers and presenters, and as conference participants; and 3) to catalyze innovative community engaged research using interactive meeting methods that promote learning, support collective problem solving, and encourage new conceptual frameworks. These conferences have advanced community engagement across the translational research spectrum in biomedical research. For the 2017 meeting, described here, the overarching theme was
The forum was attended by over 210 participants. This conference used novel approaches to fulfill its objectives of participant diversity, meaningful stakeholder engagement, and eliciting varied distinct perspectives to advance the science of community engaged research. Innovative strategies for the conference included: Think Tanks focused on emerging community engaged research topics or topics in need of urgent attention. These dynamic group sessions provided for freely sharing ideas with the purpose of creating change and facilitating new research collaborations. Learning Labs offered unique opportunities to gain practical knowledge regarding innovative methods in community engaged research. Learning Labs also facilitated the wide broadcast of locally successful engagement methods with the goal of speeding the uptake and implementation of community engaged methods. Travel Scholarships were provided for twenty community and patient representatives to participate in the conference. The lack of travel funds was a significant barrier to stakeholder participation in prior community engaged research meetings. The scholarships expanded the role of community and patient representatives in setting research priorities and promoting methods development. Meaningful Engagement meant that community members and patients participated in decision making on all aspects of the conference planning, including the selection of themes, topics, and speakers, and were fully integrated into the conference as speakers, panelists, and moderators.
Community and stakeholder engagement can directly impact research by enhancing clinical trial design, increasing relevance, and increasing recruitment, accrual and retention (Staley K.: Exploring Impact: Public 53 Involvement in NHS, Public Health and Social Care Research - INVOLVE.; 2009, Johnson et al Clin Transl Sci 8:388-54 390, 2015, Joosten et al Acad Med 90:1646-1650, 2015). The 2017 Advancing the Science of Community Engaged Research meeting, facilitated meaningful engagement of diverse stakeholder groups including racial and ethnic minorities, community and patient representatives, and junior investigators. Of 210 attendees, 72 completed the evaluation, and, of those, 36% self-affiliated as community members, and 21% as patient/caregiver advocacy, faith-based, or tribal organization members. This conference 1) represented a step toward expanding the scientific basis for the community engaged research (CEnR) field; 2) catalyzed innovative community engaged research; and 3) enhanced the reach and impact of the scientific developments emerging from pioneering work in community engagement.
为满足推进社区参与研究领域的迫切需求，范德比尔特大学医学中心和梅哈里医学院的教员组织了全国性会议“推进社区参与研究科学（CEnR）：转化研究中利益相关者参与的创新与有效方法”，于2017年9月14 - 15日在华盛顿特区召开（见补充文件1）。这些会议汇聚了不同类型的利益相关者，以分享社区参与研究的证据以及实施新的和加强现有研究项目的实践知识。该系列会议的目标是：1）通过召集研究人员、社区合作伙伴、患者权益倡导组织及其他人员分享创新方法和策略，扩展社区参与研究领域的科学基础；2）通过让社区代表和患者权益倡导者有意义地参与规划、担任演讲者和展示者以及作为会议参与者，使其参与社区参与研究新方法的开发；3）利用促进学习、支持集体解决问题并鼓励新的概念框架的互动会议方法，推动创新的社区参与研究。这些会议在生物医学研究的转化研究范围内推进了社区参与。对于此处描述的2017年会议，总体主题是
超过210名参与者参加了此次论坛。本次会议采用新颖方法以实现其参与者多元化、利益相关者有意义参与以及引出不同独特观点以推进社区参与研究科学的目标。会议的创新策略包括：智库聚焦新兴的社区参与研究主题或急需关注的主题。这些充满活力的小组会议旨在自由分享想法，以实现变革并促进新的研究合作。学习实验室提供了获取社区参与研究创新方法实践知识的独特机会。学习实验室还推动广泛传播当地成功的参与方法，目标是加速社区参与方法的采用和实施。为20名社区和患者代表提供了参会奖学金。缺乏差旅费是利益相关者参与以往社区参与研究会议的重大障碍。这些奖学金扩大了社区和患者代表在确定研究重点和促进方法开发方面的作用。有意义的参与意味着社区成员和患者参与会议规划的各个方面的决策，包括主题、议题和演讲者的选择，并作为演讲者、小组成员和主持人全面融入会议。
社区和利益相关者的参与可通过改进临床试验设计、提高相关性以及增加招募、入组和留存率直接影响研究（Staley K.：《探索影响：公众参与国民保健制度、公共卫生和社会护理研究——INVOLVE》；2009年，Johnson等人，《临床转化科学》8：388 - 390，2015年，Joosten等人，《学术医学》90：1646 - 1650，2015年）。2017年推进社区参与研究科学会议促进了包括种族和少数民族、社区和患者代表以及初级研究人员在内的不同利益相关者群体的有意义参与。在210名与会者中，72人完成了评估，其中36%自认为是社区成员，21%是患者/护理者权益倡导者、基于信仰的组织成员或部落组织成员。本次会议1）朝着扩展社区参与研究（CEnR）领域的科学基础迈出了一步；2）推动了创新的社区参与研究；3）增强了社区参与开创性工作所产生的科学发展的影响力和范围。
