Dunbar Helena, Carter Bernie, Brown Jayne
Leicester School of Nursing and Midwifery, De Montfort University, Leicester, LE1 9BH, UK.
Edge Hill University, Ormskirk, Lancashire, L39 4QP, UK.
Health Place. 2019 May;57:101-106. doi: 10.1016/j.healthplace.2019.03.004. Epub 2019 Apr 22.
Little literature examines the cognitive journey taken by parents considering/receiving hospice care for their child. A constructivist grounded theory study explored 38 parents' views of considering/using a children's hospice. Data analysed from focus groups and interviews identified three main concepts. The focus of this paper is identified as Coming 'Home'. This concept depicts the desire and the sense of searching that parents experienced in trying to find a place, other than their actual home, where their child could access a caring environment and their parents received some respite from caregiving. Despite there being a paradox associated with hospice-based respite, once they had crossed the threshold the parents bonded with the place and experienced rootedness and familiarity. The hospice became a place of living and belonging; a place where they could 'come home'.
鲜有文献探讨父母在考虑为其子女接受临终关怀护理或正在接受该护理时的心路历程。一项建构主义扎根理论研究探讨了38位父母对于考虑使用/正在使用儿童临终关怀服务的看法。通过对焦点小组讨论和访谈数据的分析，确定了三个主要概念。本文的重点被确定为“回家”。这一概念描绘了父母在努力寻找一个地方（而非他们的实际住所）时所经历的渴望和探索感，在这个地方，他们的孩子可以获得关爱环境，而父母也能从照料中得到一些喘息机会。尽管基于临终关怀的喘息服务存在一种矛盾之处，但一旦父母跨过门槛，他们就与这个地方建立了联系，并体验到了归属感和熟悉感。临终关怀机构变成了一个生活和归属的地方；一个他们可以“回家”的地方。
