Mucke J, Fischer-Betz R, Schneider M
Poliklinik und Funktionsbereich für Rheumatologie und Hiller Forschungszentrum, Universitätsklinikum Düsseldorf, HHUD, Moorenstr. 5, 40225, Düsseldorf, Deutschland.
Z Rheumatol. 2019 Aug;78(6):500-510. doi: 10.1007/s00393-019-0633-8.
As long as we cannot cure diseases such as systemic lupus erythematosus (SLE), it must be our goal that people with SLE can live a largely normal life. It should not be dominated by the disease. The main goal is secondary prevention, i. e. the prevention of harm. In 2020 we want to make a better contribution to this aim. For this article on SLE, being fit for 2020 therefore means applying the basic concepts of care for patients with SLE on a regular basis. The focus is on the new concepts resulting from the new classification criteria, the optimized basic care (BASIC), the complex communication with those affected, the new EULAR recommendations for monitoring SLE, the integration of biologics into the treatment regimen, the targeted therapy (T-2-T) and thus the criteria low disease activity and remission, the question of new care structures for rare and complex systemic diseases and finally the outlook on future treatment concepts, the basis of which we will all create in the coming years. If we consistently apply the current options, we will be able to further improve the life situation and quality of life of those affected even without newly approved drugs.
只要我们无法治愈系统性红斑狼疮（SLE）等疾病，那么让SLE患者能够基本正常生活就必然是我们的目标。生活不应被疾病主导。主要目标是二级预防，即预防损害。在2020年，我们希望能为这一目标做出更大贡献。对于这篇关于SLE的文章而言，适应2020年意味着要定期应用针对SLE患者的基本护理理念。重点在于新分类标准带来的新概念、优化的基础护理（BASIC）、与患者的复杂沟通、欧洲抗风湿病联盟（EULAR）关于监测SLE的新建议、将生物制剂纳入治疗方案、靶向治疗（T-2-T）以及由此而来的低疾病活动度和缓解标准、罕见和复杂系统性疾病新护理结构的问题，最后是对未来治疗概念的展望，而未来几年我们都将为此奠定基础。如果我们持续应用当前的方法，即便没有新批准的药物，我们也能够进一步改善患者的生活状况和生活质量。
