Hart Laura C, van Tilburg Miranda A L, Campbell Robert, Faldowski Richard A, Nazareth Meaghan, Ndugga Maggwa, Coltrane Chad, de Ferris Maria Diaz-Gonzalez
Division of General Internal Medicine and Epidemiology, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
Division of Ambulatory Pediatrics, Nationwide Children's Hospital, Columbus, Ohio.
Child Care Health Dev. 2019 Jul;45(4):577-584. doi: 10.1111/cch.12683. Epub 2019 May 23.
A parent's level of role overload, a situation in which the demands of an individual's roles are beyond their capacity to perform adequately, has been associated with poor outcomes in adolescents. It is unknown if role overload in parents is associated with less health care transition (HCT) readiness in their children with chronic conditions. We sought to assess this relationship.
Youth with chronic conditions attending a therapeutic camp and their parents completed online consents/assents and de-identified surveys. Parents reported on parental role overload using the Reilly Role Overload Scale and a proxy assessment of the youth's HCT readiness using the STAR -Parent Questionnaire. Youth self-reported on their HCT readiness using the STAR Questionnaire. Linear regression measured the relationship between parent role overload and HCT readiness, controlling for youth's age, sex, and degree of youth's educational support.
One hundred fifty-two parents and 50 youth completed the measures. Greater parental role overload was associated with less overall HCT readiness on the parent proxy measure (β = -.12, P ≤ .008) and a lower level in the self-management domain on the parent proxy measure (β = -.20, P ≤ .001). We found no associations between parent role overload and youth self-report of HCT readiness.
Parent's level of role overload had no association with youth's self-report of HCT readiness but was negatively associated with parent proxy report of their youth's HCT readiness, suggesting that parents with high levels of role overload may perceive their youth as less ready to transition to adult-focused care.
父母的角色过载程度，即个人角色的需求超出其充分履行能力的情况，与青少年的不良后果相关。尚不清楚父母的角色过载是否与患有慢性病的子女的医疗保健过渡（HCT）准备不足有关。我们试图评估这种关系。
参加治疗营的患有慢性病的青少年及其父母完成了在线同意书/赞成书和匿名调查。父母使用赖利角色过载量表报告父母角色过载情况，并使用STAR-父母问卷对青少年的HCT准备情况进行替代评估。青少年使用STAR问卷自我报告他们的HCT准备情况。线性回归测量了父母角色过载与HCT准备情况之间的关系，同时控制了青少年的年龄、性别和青少年教育支持程度。
152名父母和50名青少年完成了测量。父母角色过载程度越高，在父母替代测量中总体HCT准备情况越低（β = -0.12，P≤0.008），在父母替代测量的自我管理领域水平越低（β = -0.20，P≤0.001）。我们发现父母角色过载与青少年自我报告的HCT准备情况之间没有关联。
父母的角色过载程度与青少年自我报告的HCT准备情况无关，但与父母对其青少年HCT准备情况的替代报告呈负相关，这表明角色过载程度高的父母可能认为他们的青少年不太准备好过渡到以成人为主的护理。
