Department of Research, Rivierduinen Eating Disorders Ursula, Leiden, The Netherlands.
Weet, Patient and Family Organization for Eating Disorders, IJsselstein, The Netherlands.
Int J Eat Disord. 2019 Aug;52(8):956-961. doi: 10.1002/eat.23091. Epub 2019 May 6.
The definition of recovery in eating disorders (EDs) according to researchers is not necessarily similar to the patient definition. This study aimed to explore the concept of recovery as assessed by those affected by an ED themselves.
Participants from the Netherlands Eating disorder Registry (NER) who reported an (former) ED diagnosis (n = 814) assessed their own recovery level: current ED, partial or full recovery. Furthermore, research-based criteria (Bardone-Cone et al., Behaviour Research and Therapy, 2010, 48, 194-202) were applied to define recovery. Within the self-assessed full recovery group (n = 179), participants who also fulfilled the research-based criteria were compared to those who were only recovered based on self-assessment in the following domains: ED psychopathology, psychiatric comorbidity, quality of life, and social and societal participation.
Ninety-six of the participants (54%) who considered themselves recovered did not fulfill the research-based definition. The two recovery groups did not significantly differ in psychiatric comorbidity, quality of life, and social and societal participation.
Absence of ED characteristics was not essential for individuals to consider themselves recovered. Although the self-assessed recovery status may be subjective, it does advocate the use of additional health indicators besides ED psychopathology when defining recovery.
研究人员对饮食障碍(ED)康复的定义不一定与患者的定义相似。本研究旨在探讨受 ED 影响的患者自身评估的康复概念。
荷兰饮食障碍登记处(NER)的参与者报告了(以前)ED 诊断(n=814),评估了他们自己的康复水平:当前 ED、部分或完全康复。此外,还应用了基于研究的标准(Bardone-Cone 等人,行为研究与治疗,2010 年,48,194-202)来定义康复。在自我评估的完全康复组(n=179)中,与仅基于自我评估在以下领域中康复的参与者相比,符合基于研究的标准的参与者在 ED 病理、精神共病、生活质量以及社会和社会参与方面进行了比较。
96 名参与者(54%)认为自己已经康复,但不符合基于研究的定义。两组在精神共病、生活质量和社会及社会参与方面没有显著差异。
个体认为自己已经康复,并不一定意味着不存在 ED 特征。尽管自我评估的康复状态可能是主观的,但它确实提倡在定义康复时除 ED 病理外,还使用其他健康指标。