School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, Callaghan, NSW, Australia.
Priority Research Centre for Stroke and Brain Injury, Hunter Medical Research Institute, New Lambton Heights, NSW, Australia.
PLoS One. 2019 May 8;14(5):e0216682. doi: 10.1371/journal.pone.0216682. eCollection 2019.
Many stroke survivors require care from informal carers such as family members and friends who may experience adverse impacts. This study aimed to qualitatively explore the unmet needs of carers of stroke survivors, and their preferences for interventions and support services. We conducted 24 semi-structured, qualitative interviews with carers of stroke survivors from the Hunter region, Australia. Inductive thematic analysis was used in the context of a needs-led framework to identify key themes of their unmet needs. Key unmet needs identified by carers of stroke survivors in this study centred on four main themes: (1) social relationships and support; (2) adequacy of information; (3) taking care of oneself; and (4) accessing appropriate services. Carers of stroke survivors desired the development of services which provide connectivity to information, training, education and community support; and inclusion in a community with social relationships and other carers of stroke survivors. Ongoing unmet needs often result in adverse health and quality of life outcomes for carers of stroke survivors. Co-designed programs and resources for carers, particularly relating to unmet needs in social, information, self-care and service access domains are needed.
许多中风幸存者需要非专业护理人员（如家庭成员和朋友）的照顾，而这些护理人员可能会经历不良影响。本研究旨在定性探讨中风幸存者护理人员的未满足需求，以及他们对干预措施和支持服务的偏好。我们对来自澳大利亚亨特地区的中风幸存者的护理人员进行了 24 次半结构化的定性访谈。在需求主导框架的背景下，采用归纳主题分析方法确定其未满足需求的关键主题。本研究中中风幸存者护理人员确定的关键未满足需求集中在四个主要主题：（1）社会关系和支持；（2）信息充足性；（3）照顾自己；（4）获得适当的服务。中风幸存者的护理人员希望开发提供信息、培训、教育和社区支持联系的服务；并希望能融入有社会关系和其他中风幸存者护理人员的社区。中风幸存者护理人员持续存在的未满足需求通常会导致其健康和生活质量出现不良后果。需要为护理人员设计共同的方案和资源，特别是在社会、信息、自我护理和服务获取领域的未满足需求方面。
