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作为一名下肢截肢患者的同伴支持导师:解释性现象学分析。

Being a peer support mentor for individuals who have had a lower limb amputation: an interpretative phenomenological analysis.

机构信息

Faculty of Health & Medicine, Lancaster University, Lancaster, UK.

Aintree University Hospital, Liverpool, UK.

出版信息

Disabil Rehabil. 2020 Dec;42(26):3850-3857. doi: 10.1080/09638288.2019.1611954. Epub 2019 May 10.

Abstract

Although peer support has received research attention within different health related contexts, there is limited research considering individuals who have experienced an amputation. In particular, the peer mentoring role is under-explored. Therefore, this research aimed to explore the experiences of participants delivering peer support interventions to individuals with lower limb loss. Eight people who acted as peer mentors for people with limb loss took part in semi-structured interviews. Data were analyzed using Interpretative Phenomenological Analysis (IPA). Results: Two overarching themes were identified from the data: "Developing a Helpful Self", in which the personal value and meaning of being a peer mentor is presented, and "Connecting with Vulnerability", which addresses the emotional challenges of peer mentoring and the impact of these on wellbeing. Findings suggest positive experiences of providing support, including increased hope, resilience and a sense of belonging and connection to others. However, peer mentors experienced challenges related to uncertainty and doubt about their mentoring abilities and with developing and maintaining resilience in the role. Recommendations include the development of training packages and increased clarity for volunteers of the peer mentor role.Implications for rehabilitationIt is important to define clearly the role of a peer mentor and the responsibilities this involves.Peer mentors should be provided with support and training to increase their confidence and ability to act appropriately when encountering distress.It is important to provide transparent guidelines and procedures to support peer mentors to minimize concerns over risk and safety.Feedback regarding how effective the support offered is and how it could be improved should be provided.

摘要

虽然同伴支持在不同的健康相关背景下已经引起了研究关注,但对于经历过截肢的个体的研究却有限。特别是,同伴指导的角色还没有得到充分的探索。因此,本研究旨在探讨参与者为下肢丧失者提供同伴支持干预的经验。八名作为肢体丧失者同伴导师的人参加了半结构化访谈。使用解释现象学分析(IPA)对数据进行了分析。结果:从数据中确定了两个总体主题:“发展有帮助的自我”,其中呈现了作为同伴导师的个人价值和意义,以及“与脆弱性联系”,其中涉及同伴指导的情感挑战以及这些挑战对幸福感的影响。研究结果表明,提供支持的积极体验包括增加希望、韧性以及归属感和与他人的联系。然而,同伴导师在指导能力的不确定性和怀疑以及在角色中发展和保持韧性方面遇到了挑战。建议包括制定培训包和提高志愿者对同伴导师角色的认识。康复的意义明确界定同伴导师的角色和职责非常重要。应为同伴导师提供支持和培训,以提高他们在遇到困难时的信心和适当行动的能力。提供透明的指导方针和程序以支持同伴导师,以最大程度地减少对风险和安全的担忧。应提供有关所提供支持的有效性以及如何改进的反馈。

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