Department of Internal Medicine, The Ohio State University Wexner Medical Center, Columbus, Ohio.
Division of Palliative Medicine, Department of Internal Medicine, The Ohio State University Wexner Medical Center, Columbus, Ohio.
J Palliat Med. 2019 Dec;22(12):1621-1623. doi: 10.1089/jpm.2018.0467. Epub 2019 May 15.
There are more adults than children living with congenital heart disease (CHD) due to improvements in surgical and medical CHD management today. In 2011, though, fewer than 30% of adult CHD patients were following up with specialized providers. An ineffective transition from pediatric to adult-focused medical care can result in lapses in CHD medical care, patient noncompliance, and increased risk of late complications. Early involvement of a palliative care team offers development of autonomy, identification of potential barriers to care, and support for patient and family that may improve transition success and quality of life in CHD patients.
由于当今先天性心脏病（CHD）的外科和医学管理水平的提高，患有 CHD 的成年人比儿童多。然而，2011 年仅不到 30%的成年 CHD 患者在接受专科医生的随访。如果从儿科到成人的医疗护理的过渡无效，可能会导致 CHD 医疗护理的中断、患者不遵医嘱以及晚期并发症风险增加。姑息治疗团队的早期介入可以帮助患者发展自主性、识别潜在的护理障碍，并为患者和家属提供支持，这可能会提高 CHD 患者的过渡成功率和生活质量。
