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癌症患者未满足的支持性护理需求:澳大利亚原住民和非原住民之间的跨文化比较。

Unmet supportive care needs among people with cancer: A cross-cultural comparison between Indigenous and Non-Indigenous Australians.

机构信息

QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.

School of Medicine and Public Health, University of Newcastle, Newcastle, New South Wales, Australia.

出版信息

Eur J Cancer Care (Engl). 2019 Sep;28(5):e13080. doi: 10.1111/ecc.13080. Epub 2019 May 15.

Abstract

OBJECTIVES

This study describes and compares the unmet supportive care needs between Indigenous and Non-Indigenous people with cancer.

METHODS

Data from two cross-sectional supportive care needs studies were matched in a 1:1 ratio for Indigenous (n = 125) and Non-Indigenous (n = 125) Australian adults diagnosed with cancer. Descriptive statistics were used to compare type and prevalence of 24 need items measured by the SCNS-SF34 and SCNAT-IP.

RESULTS

A higher proportion of Non-Indigenous participants compared to Indigenous participants reported having any moderate-to-high level of unmet needs (70% vs. 54%, p = 0.013) and the difference was consistently observed across non-matched characteristics. While concerns for caregivers, fear of recurrence and pain were central needs for both Indigenous participants and Non-Indigenous participants, there were some key differences in the specific unmet needs between groups. Physical issues including doing usual daily activities and dealing with fatigue were the top priorities for Non-Indigenous people, while money worries, dealing with psychological issues such as how to keep their spirit strong or hope about their future appeared to be priorities for Indigenous people.

CONCLUSIONS

Variations in the unmet supportive care needs between Indigenous and Non-Indigenous people with cancer may guide health professionals to target specific needs when preparing care plans.

摘要

目的

本研究描述并比较了癌症患者中土著和非土著人群未满足的支持性护理需求。

方法

对两项横断面支持性护理需求研究的数据进行了 1:1 匹配,纳入了 125 名澳大利亚确诊癌症的土著和 125 名非土著成年人。采用描述性统计方法比较了用 SCNS-SF34 和 SCNAT-IP 测量的 24 项需求项目的类型和发生率。

结果

与土著参与者相比,更多的非土著参与者报告有任何中高度未满足的需求(70%比 54%,p=0.013),且这种差异在非匹配特征中一直存在。虽然对照顾者的担忧、对复发的恐惧和疼痛是土著参与者和非土著参与者的核心需求,但两组之间在具体未满足的需求上存在一些关键差异。非土著参与者的首要问题是身体问题,包括进行日常活动和应对疲劳,而经济问题、如何保持精神状态或对未来的希望等心理问题则是土著参与者的首要问题。

结论

癌症土著和非土著人群之间支持性护理需求的差异可能指导卫生专业人员在制定护理计划时针对特定需求。

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