Choi Hojin, Bae Jeong Hoon, Lim Jae-Sung, Moon Yeonsil, Park Kee Hyung, Kim Seung Hyun, Lee Chan-Nyoung
Department of Neurology, Hanyang University Guri Hospital, Guri, Korea.
Department of Neurology, Hallym University Sacred Heart Hospital, Hallym University College of Medicine, Anyang, Korea.
Dement Neurocogn Disord. 2019 Mar;18(1):1-9. doi: 10.12779/dnd.2019.18.1.1. Epub 2019 Apr 25.
Disability associated with activities of daily living (ADL) is the basis of dementia diagnosis and is an important factor in the care of dementia patients. The status of awareness and burden of ADL disability in dementia patients was investigated six years ago and used as an important reference for "Il-sang-ye-chan" campaign. They were re-investigated in six years and compared with previous results.
The survey included caregivers of 100 dementia patients listed at the four regional dementia centers. Structured open and closed questions about ADL were asked. Assessments included age, sex, education level, economic status, severity of dementia, caregiving pattern, current statues and cognition of ADL, and caregiver needs.
The cognition of ADL was still very low (43%). Increased stress among caregivers was the biggest burden, and they frequently suffered from outing disability (56%), recent memory loss (48%), and loss of bowel/bladder control (40%). The economic burden has been greatly reduced compared with the burden six years ago and the needs of caregivers were still highly about educational guide lines or programs.
Continued interest and further investigation into ADL disability of dementia patients are needed. Korean Dementia Association will further expand the "Il-sang-ye-chan" program: via a multi-domain cognitive intervention program under the Care for ADL in dementia and Relieve symptoms in Dementia Project.
与日常生活活动（ADL）相关的残疾是痴呆症诊断的基础，也是痴呆症患者护理中的一个重要因素。六年前对痴呆症患者ADL残疾的认知状况和负担情况进行了调查，并将其作为“日升月产”运动的重要参考。六年后对其进行了重新调查，并与之前的结果进行了比较。
该调查包括四个地区痴呆症中心列出的100名痴呆症患者的护理人员。询问了有关ADL的结构化开放式和封闭式问题。评估内容包括年龄、性别、教育程度、经济状况、痴呆症严重程度、护理模式、ADL的当前状况和认知情况以及护理人员的需求。
对ADL的认知仍然很低（43%）。护理人员压力增加是最大的负担，他们经常遭受外出活动受限（56%）、近期记忆力丧失（48%）和大小便失禁（40%）的困扰。与六年前的负担相比，经济负担已大幅减轻，护理人员的需求仍然高度集中在教育指导方针或项目上。
需要对痴呆症患者的ADL残疾持续关注并进一步开展调查。韩国痴呆症协会将通过痴呆症ADL护理和缓解痴呆症状项目下的多领域认知干预项目，进一步扩大“日升月产”项目。
