Rheumatology Department, University College Dublin and St. Vincent's University Hospital, Elm Park, Dublin 4, Ireland.
Rheumatology Department, Our Lady's Hospice and Care Services, Harold's Cross, Dublin 6W, Ireland.
Ir J Med Sci. 2020 Feb;189(1):237-243. doi: 10.1007/s11845-019-02040-5. Epub 2019 May 25.
Rheumatic disease (RD) patients when family planning must consider fertility, disease activity, and management from preconception to lactation. A clear understanding is necessary, especially for those receiving disease-modifying antirheumatic medications. Previous studies have highlighted unmet needs in the care of women with RDs with reproductive healthcare needs. This study describes the first published standardized reproductive care pathway for women with RDs and the outcomes of this approach.
We developed the care pathway with multidisciplinary input from rheumatologists, rheumatology nurse specialists, obstetricians, midwives, maternal medicine specialists, and pharmacists. We identified patients' emotional and healthcare needs, ensured access to expert advice, maintenance of good disease control, and positive reproductive outcomes. We prospectively followed the patients and report the results of the service.
Ninety-eight women with median age (range) of 35 years (19-48) were assessed. The majority had an inflammatory arthritis. Seventy-six babies were born to 62 mothers. There were 12 miscarriages and one perinatal death. Breastfeeding rates at 6 weeks were low (28%).
We describe the first published evidence-based integrated multidisciplinary reproductive care pathway for women with RDs and the results of this approach. Seventy percent of women successful in trying to conceive delivered a healthy baby, and 90% of patients were 'very satisfied' with the service.
风湿性疾病 (RD) 患者在计划生育时必须考虑生育能力、疾病活动度以及从受孕前到哺乳期的管理。有必要进行明确的了解,特别是对于那些正在接受疾病修饰抗风湿药物治疗的患者。先前的研究强调了患有生殖健康需求的 RD 女性在护理方面的未满足需求。本研究描述了第一个为 RD 女性制定的标准化生殖护理途径以及该方法的结果。
我们与风湿病学家、风湿病学护士专家、产科医生、助产士、母胎医学专家和药剂师共同制定了护理途径。我们确定了患者的情感和医疗保健需求,确保获得专家建议、维持良好的疾病控制和积极的生殖结果。我们前瞻性地随访了患者,并报告了该服务的结果。
评估了 98 名中位年龄(范围)为 35 岁(19-48 岁)的女性。大多数患有炎症性关节炎。62 位母亲生育了 76 个婴儿。有 12 例流产和 1 例围产期死亡。母乳喂养率在 6 周时较低(28%)。
我们描述了第一个为 RD 女性制定的基于证据的综合多学科生殖护理途径以及该方法的结果。70%的尝试怀孕的女性成功地生下了健康的婴儿,90%的患者对该服务“非常满意”。