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书写通向幸福之路:一项针对乳腺癌幸存者社区工作坊的定性研究。

Writing toward well-being: A qualitative study of community-based workshops with breast cancer survivors.

作者信息

Thomas Roanne, Gifford Wendy, Hammond Chad

机构信息

Full Professor, School of Rehabilitation Sciences, Faculty of Health Sciences, University of Ottawa, 451 Smyth Road (RGN Room 3068), Ottawa, ON, K1H 8M5 T: 613-562-5800 (8645), F: 613-562-5428; Email:

Associate Professor, School of Nursing, Faculty of Health Sciences, University of Ottawa, 451 Smyth Road (RGN Room 1118), Ottawa, ON K1H 8M5 Email:

出版信息

Can Oncol Nurs J. 2017 May 1;27(2):178-185. doi: 10.5737/23688076272178185. eCollection 2017 Spring.

DOI:10.5737/23688076272178185
PMID:31148636
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6516224/
Abstract

Transitioning to breast cancer survivorship can be challenging, yet there are few community-based supports. Writing is a promising psychosocial intervention, but most studies have evaluated independent writing. In contrast, our qualitative study (n=12) explored women's experiences in a community-based workshop. The analysis of workshop recordings, journals, and interviews resulted in three themes: (a) Sharing in safe spaces, (b) Seeking permission and balance, and (c) Fear and uncertainty. The themes document unmet needs related to the emotional impact of breast cancer, as well as the potential of community-based writing to enhance well-being. Such programs may address gaps in cancer survivorship care by providing safe spaces for emotional expression, while supporting participants in the crafting of new narratives focused on well-being.

摘要

向乳腺癌幸存者阶段过渡可能具有挑战性,但基于社区的支持却很少。写作是一种很有前景的心理社会干预方法,但大多数研究评估的是独立写作。相比之下,我们的定性研究(n = 12)探讨了女性在社区研讨会上的经历。对研讨会录音、日志和访谈的分析得出了三个主题:(a)在安全空间中分享,(b)寻求许可与平衡,以及(c)恐惧与不确定性。这些主题记录了与乳腺癌情感影响相关的未满足需求,以及基于社区的写作对增进幸福感的潜力。此类项目可以通过提供情感表达的安全空间来填补癌症幸存者护理方面的空白,同时支持参与者构建关注幸福感的新叙事。

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本文引用的文献

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'It is hard for mums to put themselves first': how mothers diagnosed with breast cancer manage the sociological boundaries between paid work, family and caring for the self.“妈妈们很难把自己放在第一位”:被诊断患有乳腺癌的母亲如何处理有偿工作、家庭和照顾自己之间的社会学界限。
Soc Sci Med. 2014 Sep;117:96-106. doi: 10.1016/j.socscimed.2014.07.043. Epub 2014 Jul 18.
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Expressive writing interventions in cancer patients: a systematic review.癌症患者的表达性写作干预措施:系统评价。
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Effects of an expressive writing intervention on cancer-related distress in Danish breast cancer survivors - results from a nationwide randomized clinical trial.表达性写作干预对丹麦乳腺癌幸存者癌症相关困扰的影响——一项全国性随机临床试验的结果。
Psychooncology. 2013 Jul;22(7):1492-500. doi: 10.1002/pon.3193. Epub 2012 Sep 19.
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Characterizing distress, the 6th vital sign, in an oncology pain clinic.描绘肿瘤科疼痛门诊中的第 6 生命体征——痛苦。
Curr Oncol. 2012 Apr;19(2):e53-9. doi: 10.3747/co.19.882.
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Prevalence and correlates of cancer survivors' supportive care needs 6  months after diagnosis: a population-based cross-sectional study.癌症患者诊断后 6 个月的支持性护理需求的流行情况及其相关因素:一项基于人群的横断面研究。
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A pilot study of expressive writing intervention among Chinese-speaking breast cancer survivors.中文乳腺癌幸存者表达性写作干预的初步研究。
Health Psychol. 2012 Sep;31(5):548-51. doi: 10.1037/a0026834. Epub 2012 Jan 9.
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