Jacobs Delphine, Steyaert Jean, Dierickx Kris, Hens Kristien
Center for Biomedical Ethics and Law, Department of Medicine, KU Leuven, Leuven, Belgium.
Center for Autism Expertise, Child and Adolescent Psychiatry, University Hospitals Leuven, Leuven, Belgium.
Front Psychiatry. 2019 May 28;10:372. doi: 10.3389/fpsyt.2019.00372. eCollection 2019.
Clinicians working with children with autism spectrum disorder (ASD) occupy an important position between parents and the wide-ranging research findings. However, it is not widely known how clinicians view and experience ASD in children, even though their perspective has been shown to significantly influence their work. Sixteen physicians working with preschool children without a diagnosis of (intellectual or other) disability with a (presumed) diagnosis of ASD participated in a semistructured interview. They described their professional views on ASD, and how they experienced its use in their clinical practice. The data were analyzed by applying the qualitative research method of interpretative phenomenological analysis of the data through Nvivo 11. The main topic of the interviewed physicians' views and experiences of ASD in a young child comprised three inductively established themes: 1) physicians' views on ASD are multifaceted but fit within their personal clinical styles; 2) the ASD diagnosis is a "descriptive" part of a clinical trajectory; and 3) ASD treatment is a mix of "standard" approaches and a personalized search. These physicians' perspectives on ASD are composed of multiple and sometimes ambiguous facets. However, their views are embedded in their personal clinical styles in general (i.e., beyond ASD) and are experienced as clinically "workable." With the aim of finding an adequate approach to the problems parents bring to their office, many interviewed physicians say that-complementary to or rather than a classificatory diagnosis-they prefer using a personalized "profile" of a child in a therapeutic "process." The interviewed physicians consider doubts and concerns to be an inherent part of their clinical work with ASD in young children, but do not experience this ambiguity as an obstacle to clinical care. These physicians deal with the multiplicity of their views on ASD by basing their eclectic views on their generally adopted clinical styles, and by selecting what works for them, and for the parents and child, from what they regard as the 'textbook knowledge' on ASD. We discuss the implications of these findings for translating research results to the clinic.
诊治患有自闭症谱系障碍(ASD)儿童的临床医生在家长和广泛的研究结果之间占据着重要位置。然而,尽管临床医生的观点已被证明会对其工作产生重大影响,但人们对他们如何看待和体验儿童ASD却并不十分了解。16名诊治学龄前儿童的医生参与了一项半结构式访谈,这些儿童未被诊断为(智力或其他)残疾,但(推测)患有ASD。他们描述了自己对ASD的专业看法,以及在临床实践中对其应用的体验。通过Nvivo 11软件运用解释现象学分析这一定性研究方法对数据进行了分析。受访医生对幼儿ASD的看法和体验的主要主题包括三个归纳得出的主题:1)医生对ASD的看法是多方面的,但符合他们个人的临床风格;2)ASD诊断是临床轨迹的“描述性”部分;3)ASD治疗是“标准”方法与个性化探索的结合。这些医生对ASD的看法由多个方面组成,有时还存在模糊性。然而,他们的观点总体上(即超出ASD范畴)融入了个人临床风格,并且在临床实践中被认为是“可行的”。为了找到解决家长带到诊所问题的适当方法,许多受访医生表示,作为分类诊断的补充或替代,他们更倾向于在治疗“过程”中使用儿童的个性化“档案”。受访医生认为疑虑是他们诊治幼儿ASD临床工作的固有组成部分,但并未将这种模糊性视为临床护理的障碍。这些医生通过将他们折衷的观点建立在普遍采用的临床风格基础上,并从他们认为的ASD“教科书知识”中选择对自己、家长和孩子有效的方法,来应对他们对ASD的多种看法。我们讨论了这些发现对将研究结果转化为临床实践的启示。