Suppr超能文献

医生对幼儿自闭症谱系障碍诊断的看法与经验

Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children.

作者信息

Jacobs Delphine, Steyaert Jean, Dierickx Kris, Hens Kristien

机构信息

Center for Biomedical Ethics and Law, Department of Medicine, KU Leuven, Leuven, Belgium.

Center for Autism Expertise, Child and Adolescent Psychiatry, University Hospitals Leuven, Leuven, Belgium.

出版信息

Front Psychiatry. 2019 May 28;10:372. doi: 10.3389/fpsyt.2019.00372. eCollection 2019.

Abstract

Clinicians working with children with autism spectrum disorder (ASD) occupy an important position between parents and the wide-ranging research findings. However, it is not widely known how clinicians view and experience ASD in children, even though their perspective has been shown to significantly influence their work. Sixteen physicians working with preschool children without a diagnosis of (intellectual or other) disability with a (presumed) diagnosis of ASD participated in a semistructured interview. They described their professional views on ASD, and how they experienced its use in their clinical practice. The data were analyzed by applying the qualitative research method of interpretative phenomenological analysis of the data through Nvivo 11. The main topic of the interviewed physicians' views and experiences of ASD in a young child comprised three inductively established themes: 1) physicians' views on ASD are multifaceted but fit within their personal clinical styles; 2) the ASD diagnosis is a "descriptive" part of a clinical trajectory; and 3) ASD treatment is a mix of "standard" approaches and a personalized search. These physicians' perspectives on ASD are composed of multiple and sometimes ambiguous facets. However, their views are embedded in their personal clinical styles in general (i.e., beyond ASD) and are experienced as clinically "workable." With the aim of finding an adequate approach to the problems parents bring to their office, many interviewed physicians say that-complementary to or rather than a classificatory diagnosis-they prefer using a personalized "profile" of a child in a therapeutic "process." The interviewed physicians consider doubts and concerns to be an inherent part of their clinical work with ASD in young children, but do not experience this ambiguity as an obstacle to clinical care. These physicians deal with the multiplicity of their views on ASD by basing their eclectic views on their generally adopted clinical styles, and by selecting what works for them, and for the parents and child, from what they regard as the 'textbook knowledge' on ASD. We discuss the implications of these findings for translating research results to the clinic.

摘要

诊治患有自闭症谱系障碍(ASD)儿童的临床医生在家长和广泛的研究结果之间占据着重要位置。然而,尽管临床医生的观点已被证明会对其工作产生重大影响,但人们对他们如何看待和体验儿童ASD却并不十分了解。16名诊治学龄前儿童的医生参与了一项半结构式访谈,这些儿童未被诊断为(智力或其他)残疾,但(推测)患有ASD。他们描述了自己对ASD的专业看法,以及在临床实践中对其应用的体验。通过Nvivo 11软件运用解释现象学分析这一定性研究方法对数据进行了分析。受访医生对幼儿ASD的看法和体验的主要主题包括三个归纳得出的主题:1)医生对ASD的看法是多方面的,但符合他们个人的临床风格;2)ASD诊断是临床轨迹的“描述性”部分;3)ASD治疗是“标准”方法与个性化探索的结合。这些医生对ASD的看法由多个方面组成,有时还存在模糊性。然而,他们的观点总体上(即超出ASD范畴)融入了个人临床风格,并且在临床实践中被认为是“可行的”。为了找到解决家长带到诊所问题的适当方法,许多受访医生表示,作为分类诊断的补充或替代,他们更倾向于在治疗“过程”中使用儿童的个性化“档案”。受访医生认为疑虑是他们诊治幼儿ASD临床工作的固有组成部分,但并未将这种模糊性视为临床护理的障碍。这些医生通过将他们折衷的观点建立在普遍采用的临床风格基础上,并从他们认为的ASD“教科书知识”中选择对自己、家长和孩子有效的方法,来应对他们对ASD的多种看法。我们讨论了这些发现对将研究结果转化为临床实践的启示。

相似文献

1
Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children.
Front Psychiatry. 2019 May 28;10:372. doi: 10.3389/fpsyt.2019.00372. eCollection 2019.
4
Parents' views and experiences of the autism spectrum disorder diagnosis of their young child: a longitudinal interview study.
Eur Child Adolesc Psychiatry. 2020 Aug;29(8):1143-1154. doi: 10.1007/s00787-019-01431-4. Epub 2019 Nov 4.
5
[ADI-R and ADOS and the differential diagnosis of autism spectrum disorders: Interests, limits and openings].
Encephale. 2019 Nov;45(5):441-448. doi: 10.1016/j.encep.2019.07.002. Epub 2019 Sep 5.
6
Family Physicians' Awareness of Autism Spectrum Disorder: Results from a Survey Study.
Open Access Maced J Med Sci. 2019 Mar 27;7(6):967-972. doi: 10.3889/oamjms.2019.199. eCollection 2019 Mar 30.
8
Negotiating knowledge: parents' experience of the neuropsychiatric diagnostic process for children with autism.
Int J Lang Commun Disord. 2016 May;51(3):328-38. doi: 10.1111/1460-6984.12210. Epub 2016 Feb 1.
9
Parenting experiences of fathers of children with autism spectrum disorder with or without intellectual disability.
J Intellect Disabil Res. 2020 Jun;64(6):463-474. doi: 10.1111/jir.12728. Epub 2020 Apr 26.
10
Fathers' Experience With Autism Spectrum Disorder: Nursing Implications.
J Pediatr Health Care. 2016 Sep-Oct;30(5):453-63. doi: 10.1016/j.pedhc.2015.10.012. Epub 2015 Dec 15.

引用本文的文献

2
Autism diagnosis as a social process.
Autism. 2022 Feb;26(2):488-498. doi: 10.1177/13623613211030392. Epub 2021 Jul 9.

本文引用的文献

1
Documenting diagnosis: testing, labelling, and the production of medical records in an autism clinic.
Sociol Health Illn. 2019 Jul;41(6):1023-1039. doi: 10.1111/1467-9566.12882. Epub 2019 Mar 5.
3
Saturation in qualitative research: exploring its conceptualization and operationalization.
Qual Quant. 2018;52(4):1893-1907. doi: 10.1007/s11135-017-0574-8. Epub 2017 Sep 14.
4
A systematic review and meta-analysis of the long-term overall outcome of autism spectrum disorders in adolescence and adulthood.
Acta Psychiatr Scand. 2016 Jun;133(6):445-52. doi: 10.1111/acps.12559. Epub 2016 Jan 13.
5
Heritability of autism spectrum disorders: a meta-analysis of twin studies.
J Child Psychol Psychiatry. 2016 May;57(5):585-95. doi: 10.1111/jcpp.12499. Epub 2015 Dec 27.
6
Identifying the lost generation of adults with autism spectrum conditions.
Lancet Psychiatry. 2015 Nov;2(11):1013-27. doi: 10.1016/S2215-0366(15)00277-1.
7
Resuscitating the biopsychosocial model.
Lancet Psychiatry. 2014 Dec;1(7):496-7. doi: 10.1016/S2215-0366(14)00058-3. Epub 2014 Dec 3.
8
Early Infant Development and Intervention for Autism Spectrum Disorder.
J Child Neurol. 2015 Dec;30(14):1921-9. doi: 10.1177/0883073815601500. Epub 2015 Aug 31.
9
Citing conduct, individualizing symptoms: Accomplishing autism diagnosis in clinical case conferences.
Soc Sci Med. 2015 Oct;142:214-22. doi: 10.1016/j.socscimed.2015.08.022. Epub 2015 Aug 18.
10

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验