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电子健康记录和信息与儿科患者及其监护人的交流。

Electronic Communication of the Health Record and Information With Pediatric Patients and Their Guardians.

出版信息

Pediatrics. 2019 Jul;144(1). doi: 10.1542/peds.2019-1359. Epub 2019 Jun 17.

Abstract

Communication of health data has evolved rapidly with the widespread adoption of electronic health records (EHRs) and communication technology. What used to be sent to patients via paper mail, fax, or e-mail may now be accessed by patients via their EHRs, and patients may also communicate securely with their medical team via certified technology. Although EHR technologies have great potential, their most effective applications and uses for communication between pediatric and adolescent patients, guardians, and medical teams has not been realized. There are wide variations in available technologies, guiding policies, and practices; some physicians and patients are successful in using certified tools but others are forced to limit their patients' access to e-health data and associated communication altogether. In general, pediatric and adolescent patients are less likely than adult patients to have electronic access and the ability to exchange health data. There are several reasons for these limitations, including inconsistent standards and recommendations regarding the recommended age for independent access, lack of routine EHR support for the ability to filter or proxy such access, and conflicting laws about patients' and physicians' rights to access EHRs and ability to communicate electronically. Effective, safe electronic exchange of health data requires active collaboration between physicians, patients, policy makers, and health information technology vendors. This policy statement addresses current best practices for these stakeholders and delineates the continued gaps and how to address them.

摘要

随着电子健康记录 (EHR) 和通信技术的广泛采用,健康数据的交流迅速发展。过去通过纸质邮件、传真或电子邮件发送给患者的内容,现在患者可以通过他们的 EHR 访问,并且患者也可以通过经认证的技术与他们的医疗团队安全地进行通信。尽管 EHR 技术具有巨大的潜力,但它们在儿科和青少年患者、监护人以及医疗团队之间的交流中的最佳应用和用途尚未实现。可用技术、指导政策和实践存在广泛差异;一些医生和患者成功地使用了经过认证的工具,但其他患者则被迫完全限制其访问电子健康数据和相关通信。一般来说,儿科和青少年患者比成年患者更不可能通过电子方式访问和交换健康数据。造成这些限制的原因有几个,包括关于独立访问推荐年龄的标准和建议不一致、EHR 缺乏常规支持过滤或代理这种访问的能力,以及关于患者和医生访问 EHR 和电子通信能力的权利的冲突法律。有效的、安全的健康数据电子交换需要医生、患者、政策制定者和医疗信息技术供应商之间的积极合作。本政策声明针对这些利益相关者的当前最佳实践,并描述了持续存在的差距以及如何解决这些差距。

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