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电子健康工具在腹主动脉瘤患者中的应用:开发与初步评估。

eHealth tool for patients with abdominal aortic aneurysm: development and initial evaluation.

机构信息

Department of Vascular Surgery, Karolinska University Hospital, Stockholm, Sweden.

Department of Molecular Medicine and Surgery, Karolinska Institutet, Stockholm, Sweden.

出版信息

Scand J Caring Sci. 2020 Jun;34(2):348-356. doi: 10.1111/scs.12736. Epub 2019 Jul 17.

Abstract

RATIONALE

Abdominal aortic aneurysm (AAA) is a prevalent condition among elderly men and may require surgical repair. Recent technical advances offer new opportunities to provide patients and next of kin with tailored and individualised information. eHealth tools have proven useful in other patient cohorts, but there are currently no validated educational eHealth tools for patients with AAA.

AIM

Our aim was to develop and evaluate an eHealth tool for patients with abdominal aortic aneurysm using a participatory design process.

METHOD

Patients, healthcare professionals and a technical team were involved in the development of the eHealth tool. The tool was assessed for content and usability through questionnaires, validated instruments and focus group interviews. Readability was assessed using Flesch Reading Ease Score (FRE) and Flesch-Kincaid Grade Level (FKGL). Interview data were analysed using thematic content analysis.

RESULTS

Factual content and illustrations were accurate and in line with current information routine. Readability assessments produced a mean FRE score of 42.2 (±3,7) and mean FKGL of 10 (±1), implying that the eHealth tool may be difficult to comprehend for certain users. However, participants in the focus group interviews found the tool to be understandable, relevant and easy to use.

CONCLUSION

The developed eHealth tool is acceptable, understandable and usable for the potential end-users. Further evaluation of the usability of the tool and effect on outcome in clinical care is warranted. This is the first educational eHealth tool for patients with AAA and has potential to contribute to improved communication and quality of care for AAA patients.

摘要

背景

腹主动脉瘤(AAA)是老年男性中普遍存在的病症,可能需要手术修复。最近的技术进步为患者和其家属提供了量身定制和个性化的信息提供了新的机会。电子健康工具已被证明在其他患者群体中有用,但目前尚无针对 AAA 患者的经过验证的教育性电子健康工具。

目的

我们旨在使用参与式设计过程为腹主动脉瘤患者开发和评估电子健康工具。

方法

患者、医疗保健专业人员和技术团队参与了电子健康工具的开发。通过问卷调查、验证工具和焦点小组访谈评估了工具的内容和可用性。使用 Flesch 阅读容易度得分(FRE)和 Flesch-Kincaid 年级水平(FKGL)评估可读性。使用主题内容分析对访谈数据进行分析。

结果

真实内容和插图准确,符合当前信息常规。可读性评估产生的平均 FRE 得分为 42.2(±3.7),平均 FKGL 为 10(±1),这意味着电子健康工具对于某些用户来说可能难以理解。然而,焦点小组访谈的参与者认为该工具易于理解、相关且易于使用。

结论

开发的电子健康工具对潜在的最终用户是可接受、可理解和可用的。需要进一步评估该工具的可用性及其对临床护理结果的影响。这是第一个针对 AAA 患者的教育性电子健康工具,有可能有助于改善 AAA 患者的沟通和护理质量。

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