The National Catholic School of Social Service,Catholic University of America, Washington, District of Columbia, USA.
Department of Medicine,Georgetown University Medical Center, Washington, District of Columbia, USA.
Death Stud. 2021;45(6):469-479. doi: 10.1080/07481187.2019.1648341. Epub 2019 Aug 9.
While end-of-life care (EoLC) priorities for patients dying in the hospital are well-documented, few data characterize needs and experiences of their family members. We conducted thematic analysis of audio recorded interviews of 18 bereaved family members to elucidate these experiences. Participants' memories were organized into two parent themes: those related to satisfaction with the care received and effective communication; those identifying shortcomings in patient care, hospital-family communication, hospital environment, and care burden on the part of family members. These findings provide insight to enhance services to patients and their families at end-of-life and improve postmortem and bereavement services.
虽然在医院去世的患者的临终关怀（EoLC）重点已经有了充分的记录，但很少有数据能够描述其家属的需求和体验。我们对 18 名失去亲人的家属的音频记录访谈进行了主题分析，以阐明这些体验。参与者的记忆被组织成两个主题：一个与对所接受的护理的满意度和有效沟通有关；另一个则确定了患者护理、医院-家庭沟通、医院环境以及家庭成员护理负担方面的不足。这些发现为改善临终服务和改善死后和丧亲服务提供了深入了解。
