Palliative and Supportive Care Research Department, Cabrini Health, Malvern, Victoria, Australia; Institute for Ethics & Society, The University of Notre Dame Australia, New South Wales, Australia; Departments of Psychosocial Cancer Care and Medicine, St. Vincent's Hospital Fitzroy, The University of Melbourne, Victoria, Australia.
School of Public Health and Preventive Medicine, Monash University, Clayton, Victoria, Australia.
J Pain Symptom Manage. 2019 Dec;58(6):977-988. doi: 10.1016/j.jpainsymman.2019.08.004. Epub 2019 Aug 9.
Spiritual care refers to practices and rituals addressing spiritual/religious concerns. It supports coping with loss and finding hope, meaning, and peace. Although integral to palliative care, its implementation is challenging.
To understand an Australian cohort of patients' and caregivers' perspectives about experiencing and optimizing spiritual care in the context of advanced illness.
Patients and caregivers of patients with ≤12 month prognosis were recruited from a broader spiritual study via criterion sampling and agreed to opt-in interviews. Participants from an Australian, metropolitan health service received a spiritual care definition and were interviewed. Transcripts were analyzed using qualitative description.
30 patients (17 male; mean age 70 years) and 10 caregivers (six male; mean age 58.9 years) participated. 27 identified as Christian, and 10 had no religion. Participants described multifaceted and contested beliefs about spirituality. Many queried the tangibility of spirituality, but all valued respectful staff who affirmed personhood, that is, each individual's worth, especially when care exceeded expectations. They also resonated with positive organizational and environmental tones that improved holistic well-being. Participants stressed the importance of the hospital's welcoming context and skilled care, which comforted and reassured.
Although many patients and caregivers did not resonate with the term "spiritual care," all described how the hospital's hospitality could affirm their values and strengthen coping. The phrase "spiritual care and hospitality" may optimally articulate and guide care in similar, pluralist inpatient palliative care contexts, recognizing that such care encompasses an interplay of generalist and specialist pastoral care staff and organizational and environmental qualities.
精神关怀是指针对精神/宗教问题的实践和仪式。它有助于应对失落，寻找希望、意义和内心的平静。尽管它是姑息治疗的重要组成部分，但实施起来具有挑战性。
了解澳大利亚一组患者及其照顾者在晚期疾病背景下体验和优化精神关怀的观点。
通过标准抽样从一项更广泛的精神研究中招募了≤12 个月预后的患者及其照顾者，并同意选择参加访谈。来自澳大利亚一个大都市卫生服务机构的参与者收到了精神关怀的定义，并接受了访谈。使用定性描述法分析转录本。
30 名患者（17 名男性；平均年龄 70 岁）和 10 名照顾者（6 名男性；平均年龄 58.9 岁）参与了研究。27 名参与者自称为基督教徒，10 名无宗教信仰。参与者描述了多方面和有争议的关于精神性的信仰。许多人质疑精神性的可触知性，但所有人都看重尊重人格的员工，也就是说，每个人的价值，尤其是当护理超出预期时。他们也对改善整体幸福感的积极组织和环境基调产生共鸣。参与者强调了医院欢迎的背景和熟练护理的重要性，这给他们带来了安慰和安心。
尽管许多患者和照顾者与“精神关怀”这个术语没有共鸣，但所有人都描述了医院的热情好客如何肯定他们的价值观并增强应对能力。“精神关怀和热情好客”这一短语可能最优化地表达并指导在类似的、多元化的住院姑息治疗环境中的护理，认识到这种护理包括一般和专业的牧师关怀人员以及组织和环境质量的相互作用。
