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基于增强框架的健康信息学干预促进共同决策制定

Fostering Shared Decision Making with Health Informatics Interventions Based on the Boosting Framework.

作者信息

de Vries Marieke, Jansen Jesse, van Weert Julia, Holland Rob

机构信息

Radboud University, Institute for Computing and Information Sciences (iCIS) Nijmegen, the Netherlands.

Radboud University, Behavioural Science Institute (BSI), Nijmegen, the Netherlands.

出版信息

Stud Health Technol Inform. 2019 Jul 30;263:109-121. doi: 10.3233/SHTI190116.

DOI:10.3233/SHTI190116
PMID:31411157
Abstract

The accumulation of medical knowledge, technology and expertise has provided people with more and more options to improve their health and increase longevity. However, healthcare options typically come with benefits as well as harms and often involve important and complex, high-stakes trade-offs. The ideal of Shared Decision Making (SDM), where a healthcare provider and a patient exchange information, bring in their respective professional and existential expertise and consider the options in light of what matters most from the patient's perspective, is a paradigm that is increasingly viewed as a gold standard for high quality care nowadays. eHealth provides ample opportunities to foster personal health choices and SDM through digital information exchange and personal values clarification support. The boosting framework attempts to describe how to foster people's competences to make choices. Its vision is to equip individuals with competences, for instance improved risk literacy, to empower them to make well-informed choices when facing a difficult choice, such as decisions about health issues. Application of the boosting framework to personal health choices and the SDM process unveils new and promising horizons for future research and could inform the design and evaluation of health informatics interventions such as decision support systems.

摘要

医学知识、技术和专业技能的积累为人们提供了越来越多改善健康和延长寿命的选择。然而,医疗保健选择通常既有益处也有危害,而且往往涉及重要且复杂、风险很高的权衡取舍。共同决策(SDM)的理想模式是,医疗服务提供者和患者交流信息,引入各自的专业知识和生存经验,并根据患者认为最重要的因素来考虑各种选择,如今这种模式越来越被视为高质量医疗的黄金标准。电子健康通过数字信息交流和个人价值观澄清支持,为促进个人健康选择和共同决策提供了充足机会。增强框架试图描述如何培养人们做出选择的能力。其愿景是使个人具备各种能力,比如提高风险认知能力,以便在面临艰难选择(如有关健康问题的决策)时能够做出明智的选择。将增强框架应用于个人健康选择和共同决策过程,为未来研究揭示了新的、充满希望的前景,并可为健康信息学干预措施(如决策支持系统)的设计和评估提供参考。

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