Pluye Pierre, El Sherif Reem, Granikov Vera, Hong Quan Nha, Vedel Isabelle, Galvao Maria Cristiane Barbosa, Frati Francesca E Y, Desroches Sophie, Repchinsky Carol, Rihoux Benoît, Légaré France, Burnand Bernard, Bujold Mathieu, Grad Roland
Department of Family Medicine McGill University 5858, Chemin de la Côte-des-Neiges, Suite 300, Montréal QC H3S 1Z1 Canada.
Department of Social Medicine, Faculty of Medicine of Ribeirao Preto University of Sao Paulo Avenida Bandeirantes 3900, Ribeirão Preto, São Paulo CEP 14049-900 Brazil.
J Assoc Inf Sci Technol. 2019 Jul;70(7):643-659. doi: 10.1002/asi.24178. Epub 2019 Jan 30.
The Internet has become the first source of consumer health information. Most theoretical and empirical studies are centered on information needs and seeking, rather than on information outcomes. This review's purpose is to explore and explain health outcomes of Online Consumer Health Information (OCHI) in primary care. A participatory systematic mixed studies review with a framework synthesis was undertaken. Starting from an initial conceptual framework, our specific objectives were to (a) identify types of OCHI outcomes in primary care, (b) identify factors associated with these outcomes, and (c) integrate these factors and outcomes into a comprehensive revised framework combining an information theory and a psychosocial theory of behavior. The results of 65 included studies were synthesized using a qualitative thematic data analysis. The themes derived from the literature underwent a harmonization process that produced a comprehensive typology of OCHI outcomes. The revised conceptual framework specifies four individual and one organizational level of OCHI outcomes, while including factors such as consumers' information needs and four interdependent contextual factors. It contributes to theoretical knowledge about OCHI health outcomes, and informs future research, information assessment methods, and tools to help consumers find and use health information.
互联网已成为消费者健康信息的首要来源。大多数理论和实证研究都集中在信息需求和信息寻求上，而非信息结果。本综述的目的是探讨和解释初级保健中在线消费者健康信息（OCHI）的健康结果。我们开展了一项采用框架综合法的参与式系统混合研究综述。从最初的概念框架出发，我们的具体目标是：（a）确定初级保健中OCHI结果的类型；（b）确定与这些结果相关的因素；（c）将这些因素和结果整合到一个结合信息理论和行为心理社会理论的全面修订框架中。我们使用定性主题数据分析对65项纳入研究的结果进行了综合。从文献中得出的主题经过了一个协调过程，形成了OCHI结果的全面类型学。修订后的概念框架明确了OCHI结果的四个个体层面和一个组织层面，同时纳入了消费者信息需求等因素以及四个相互依存的背景因素。它有助于丰富关于OCHI健康结果的理论知识，并为未来的研究、信息评估方法及帮助消费者查找和使用健康信息的工具提供参考。
