Pardede Sudung Oloan, Rafli Achmad, Gunardi Hartono
Department of Child Health, Dr. Cipto Mangunkusumo Tertiary General Hospital-Faculty of Medicine Universitas Indonesia, Jakarta, Indonesia.
Saudi J Kidney Dis Transpl. 2019 Jul-Aug;30(4):812-818. doi: 10.4103/1319-2442.265456.
Chronic kidney disease (CKD) is still a serious health problem in children with increasing morbidity and affecting children's quality of life (QoL). The prevalence of children with CKD worldwide is approximately 82 cases/year/1 million children. From the Indonesian Basic Health Survey 2013, the prevalence of patients with CKD aged ≥15 years in Indonesia was 0.2%. To assess the QoL in children with CKD as well as its relationship with duration of diagnosis, severity, and related demographic factors, a cross-sectional analytic study was conducted. Individuals were recruited from July 2016 to May 2017 through consecutive sampling. CKD children aged 2-18 years who treated with conservative therapy and hemodialysis were included. Patients and their parents were asked to fill out the PedsQL™ generic score scale version 4.0 questionnaire. A total of 112 children were recruited, and QoL was assessed from parental reports (54.5%) and children's reports (56.3%). The school and emotional aspects were the lowest score parameters studied. Factor related to QoL children with CKD were length of diagnosis >60 months (P = 0.004), female (P = 0.019), and middle school (P = 0.003). More than half of the children with CKD have disturbance of QoL in general from parental reports (54.5%) and children's reports (56.3%). Length of diagnosis >60 months, female, and middle school education were all related to the QoL children with CKD.
慢性肾脏病（CKD）在儿童中仍然是一个严重的健康问题，其发病率不断上升，影响着儿童的生活质量（QoL）。全球范围内CKD儿童的患病率约为每年82例/100万儿童。根据2013年印度尼西亚基本健康调查，印度尼西亚15岁及以上CKD患者的患病率为0.2%。为了评估CKD儿童的生活质量及其与诊断时长、严重程度和相关人口统计学因素的关系，开展了一项横断面分析研究。2016年7月至2017年5月通过连续抽样招募个体。纳入接受保守治疗和血液透析的2至18岁CKD儿童。要求患者及其父母填写儿童生活质量量表（PedsQL™）通用评分量表4.0版问卷。共招募了112名儿童，生活质量通过父母报告（54.5%）和儿童报告（56.3%）进行评估。学校和情感方面是所研究的得分最低的参数。与CKD儿童生活质量相关的因素为诊断时长>60个月（P = 0.004）、女性（P = 0.019）和初中（P = 0.003）。从父母报告（54.5%）和儿童报告（56.3%）来看，超过一半的CKD儿童总体生活质量存在障碍。诊断时长>60个月、女性和初中教育都与CKD儿童的生活质量相关。
