Rossi Francesca, Coppo Monica, Zucchetti Giulia, Ricci Federica, Fagioli Franca
Rehabilitation Service, Public Health and Pediatric Sciences Department, A.O.U. Città della Salute e della Scienza, Regina Margherita Children's Hospital, Turin, Italy.
University of Turin, Turin, Italy.
J Pediatr Rehabil Med. 2019;12(3):271-277. doi: 10.3233/PRM-180573.
In Italy, most children and adolescents affected by oncological diseases are treated in one of the centers within the Italian Association of Pediatric Hematology and Oncology (AIEOP). AIEOP relies on groups of experts; each of them develops interventions in their specific field of expertise to improve the diagnostic, therapeutic, and assistance pathway of patients and families. Although rehabilitation is an important field in pediatric oncology, until recently there was no working group dedicated to it. This study intends to show the steps that led to the creation of the rehabilitation working group in AIEOP.
First of all, a survey to identify the various rehabilitation approaches applied throughout Italian centers was sent via email to 39 AIEOP centers that provide rehabilitation.
Answers received from 31 centers showed a lack of homogeneity in rehabilitation methods in terms of type of treatment, number of patients, and outcome measurement.
Some results of the survey were chosen as basic criteria of clinical best practice on which to build the first rehabilitation working-group at the national level to be proposed to the AIEOP commission.
在意大利，大多数罹患肿瘤疾病的儿童和青少年在意大利儿科血液学与肿瘤学协会（AIEOP）旗下的其中一个中心接受治疗。AIEOP依靠专家团队开展工作；每个团队在其特定专业领域制定干预措施，以改善患者及其家庭的诊断、治疗及援助流程。尽管康复治疗在儿科肿瘤学中是一个重要领域，但直到最近仍没有专门致力于此的工作组。本研究旨在展示促成AIEOP康复治疗工作组成立的各个步骤。
首先，通过电子邮件向39个提供康复治疗服务的AIEOP中心发送了一项调查，以确定意大利各中心所采用的各种康复治疗方法。
从31个中心收到的回复显示，在治疗类型、患者数量和疗效评估方面，康复治疗方法缺乏同质性。
该调查的一些结果被选为临床最佳实践的基本标准，在此基础上建立全国首个康复治疗工作组，并提交给AIEOP委员会。
