Department of Clinical Neuroscience, Rehabilitation Medicine, University of Gothenburg, , 413 45 Göteborg, Sweden.
J Rehabil Med. 2019 Oct 4;51(9):660-664. doi: 10.2340/16501977-2595.
To investigate different aspects of self-perceived impact of stroke 1 and 5 years after stroke onset, with a focus on self-perceived participation.
Longitudinal cohort study.
Forty-five persons diagnosed with first-time stroke included in the Stroke Arm Longitudinal study at University of Gothenburg (SALGOT).
Participants responded to the Stroke Impact Scale, the Impact on Participation and Autonomy and the European Quality of Life 5 dimensions at 1 year and 5 years post-stroke. Wilcoxon signed-rank test was used to check for differences in changes over time between groups.
In general, the perceived consequences of stroke were more severe after 5 years compared with at 1 year. Strength, emotion and participation were the areas most affected, along with restrictions in social life and autonomy indoors. Global disability (mRS) was moderately correlated with quality of life.
The perceived impact of stroke becomes more prominent with time, even for persons with mild-to-moderate stroke. This study highlights the need for long-term support for persons with stroke.
探讨卒中发病 1 年和 5 年后患者对自身影响的不同方面，重点关注自我感知的参与度。
纵向队列研究。
45 名首次卒中诊断患者，入组哥德堡大学卒中上肢纵向研究（SALGOT）。
参与者在卒中后 1 年和 5 年时分别对卒中影响量表、参与和自主影响量表以及欧洲生活质量 5 维度量表进行了应答。采用 Wilcoxon 符号秩检验比较不同组别随时间变化的差异。
总体而言，与卒中后 1 年相比，卒中 5 年后的感知后果更严重。力量、情绪和参与度是受影响最严重的领域，同时还伴有社会生活和室内自主受限。全球残疾（mRS）与生活质量中度相关。
即使是轻度至中度卒中患者，随着时间的推移，卒中的感知影响也会更加明显。本研究强调了对卒中患者进行长期支持的必要性。
