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患者对其在爱丁堡癌症中心接受姑息性化疗决定的看法。

Patient perceptions of their decision to undergo palliative chemotherapy in the Edinburgh Cancer Centre.

作者信息

Bowden Joanna, Gwyther Beth, Price Allan, Swan Amanda, Nussey Fiona, Hacking Belinda, Shearer Morven, Lloyd Anna

机构信息

Ward 16, Queen Margaret Hospital, Whitefield Road, Dunfermline KY12 0SU, UK,

University of St Andrews, St Andrews, UK.

出版信息

J R Coll Physicians Edinb. 2019 Sep;49(3):199-203. doi: 10.4997/JRCPE.2019.306.

DOI:10.4997/JRCPE.2019.306
PMID:31497786
Abstract

BACKGROUND

The decision to undergo chemotherapy for incurable cancer demands informed discussions about the risks and benefits of proposed treatments. Research has shown that many patients have a poor grasp of these factors.

METHODS

An evaluation of the patient experience of palliative chemotherapy decision-making was undertaken. Patients with lung or gynaecological cancers were surveyed about their decision, what they understood about its risks and benefits, and how supported they felt.

RESULTS

A total of 29 people with lung cancer (n = 21) or gynaecological cancer (n = 8) completed questionnaires. The majority felt sure about their decision, though many were less sure of the risks and benefits of treatment. Unprompted comments revealed significant nuance, including that the decision to undergo chemotherapy may not necessarily have felt like a choice.

CONCLUSIONS

Our positive findings may reflect participant selection bias, or could represent genuine comfort in decision-making in Scottish oncology clinics. Further research is needed.

摘要

背景

对于无法治愈的癌症患者,决定是否接受化疗需要就拟议治疗的风险和益处进行充分的讨论。研究表明,许多患者对这些因素了解不足。

方法

对姑息性化疗决策的患者体验进行评估。对肺癌或妇科癌症患者就其决策、对治疗风险和益处的理解以及他们所感受到的支持程度进行了调查。

结果

共有29名肺癌患者(n = 21)或妇科癌症患者(n = 8)完成了问卷调查。大多数人对自己的决定感到确定,尽管许多人对治疗的风险和益处不太确定。自发评论揭示了显著的细微差别,包括接受化疗的决定不一定感觉像是一种选择。

结论

我们的积极发现可能反映了参与者选择偏差,也可能代表了苏格兰肿瘤诊所决策过程中真正的安心感。需要进一步研究。

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Patient perceptions of their decision to undergo palliative chemotherapy in the Edinburgh Cancer Centre.患者对其在爱丁堡癌症中心接受姑息性化疗决定的看法。
J R Coll Physicians Edinb. 2019 Sep;49(3):199-203. doi: 10.4997/JRCPE.2019.306.
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[Joint decisions, how? Physician-patient communication about palliative chemotherapy].[共同决策,如何进行?医患关于姑息性化疗的沟通]
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Is Information Provision about Benefits and Risks of Treatment Options Associated with Receiving Person-Centered Care?: A Survey among Incurably Ill Cancer Patients.提供治疗方案的获益和风险相关信息是否与接受以患者为中心的护理相关?一项针对绝症癌症患者的调查。
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Patient-physician communication concerning participation in cancer chemotherapy trials.关于参与癌症化疗试验的医患沟通。
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Are patients' preferences for information and participation in medical decision-making being met? Interview study with lung cancer patients.患者对医疗决策中信息和参与的偏好是否得到满足?一项对肺癌患者的访谈研究。
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