School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
CanChild, McMaster University, Hamilton, Ontario, Canada.
Phys Occup Ther Pediatr. 2020;40(3):311-329. doi: 10.1080/01942638.2019.1665155. Epub 2019 Sep 18.
The aim of this paper is to provide a holistic description of the nature, formation and impact of parents' therapy related expectations. This qualitative descriptive study drew from initial and follow up interviews with 20 parents of children ≤ 6 years who had a developmental disability or delay and used therapy services at a children's treatment center in Ontario, Canada. Conventional content analysis was used to inductively generate themes and investigator triangulation was completed. Parent's child related expectations focused on whether the child would receive a diagnosis and what they might achieve. Parents held expectations about the availability of service and how it would be offered. Parents' expectations of service providers included their knowledge, skills, relationships and communication with the children and parents. Parents held expectations of themselves related to attendance and roles in therapy sessions and home practice. These expectations are described according to how they are shaped and changed them over time. The impact of matched/mismatched expectations is explored. Service providers can improve family-centred care and collaboration with parents by explicitly discussing parents' expectations when beginning, and throughout, therapy. Parent satisfaction and therapy engagement may improve if parents and service providers negotiate and agree upon expectations.
本文旨在全面描述父母治疗相关期望的性质、形成和影响。这项定性描述性研究最初和后续采访了 20 名加拿大安大略省一家儿童治疗中心的 6 岁以下有发育障碍或发育迟缓的儿童的父母。采用了传统的内容分析法来归纳主题，并完成了调查员的三角验证。父母对孩子的期望主要集中在孩子是否会得到诊断以及他们可能会取得什么成就上。父母对服务的可用性和提供方式有期望。父母对服务提供者的期望包括他们的知识、技能、与孩子和父母的关系以及沟通。父母对自己在治疗过程中以及家庭实践中的参与和角色也有期望。这些期望是根据它们的形成方式和随时间的变化来描述的。还探讨了期望匹配/不匹配的影响。服务提供者可以通过在开始治疗以及整个治疗过程中明确讨论父母的期望，来改善以家庭为中心的护理和与父母的合作。如果父母和服务提供者协商并就期望达成一致，可能会提高父母满意度和治疗参与度。
