Levy Kathryn, Grant Pei C, Tenzek Kelly E, Depner Rachel M, Pailler Megan E, Beaupin Lynda K
Palliative Care Institute, The Center for Hospice and Palliative Care, Cheektowaga, NY, USA.
Department of Communication, University at Buffalo, The State University of New York, Buffalo, NY, USA.
Am J Hosp Palliat Care. 2020 May;37(5):364-370. doi: 10.1177/1049909119879413. Epub 2019 Oct 2.
The Photographs of Meaning Program for pediatric palliative caregivers (POM-PPCG) is an innovative, meaning-based intervention utilizing photovoice and social media components. In 2017, 9 pediatric palliative caregivers participated in this intervention. During the social media portion of the POM-PPCG, participants were presented with weekly themes based on a meaning-making curriculum. In response, they took photographs, applied either audio or typed narratives, and shared them via social media. Ninety-five photographs with narratives were produced during the intervention. Through thematic qualitative analysis with consensual qualitative research components, 5 themes were identified: , , , , and . This study adds to existing literature by shedding light on the experiences of caregivers of children with palliative care needs. Findings from this research contribute not only to the innovative use of qualitative methods but also to the clinical knowledge and practice regarding the pediatric palliative caregiver experience.
面向儿科姑息治疗护理人员的意义照片项目（POM-PPCG）是一种创新的、基于意义的干预措施，它利用了摄影声音和社交媒体组件。2017年，9名儿科姑息治疗护理人员参与了这一干预措施。在POM-PPCG的社交媒体部分，参与者会收到基于意义构建课程的每周主题。作为回应，他们拍摄照片，添加音频或文字叙述，并通过社交媒体分享。在干预过程中产生了95张带有叙述的照片。通过带有共识性定性研究组件的主题定性分析，确定了5个主题： ， ， ， ，以及 。本研究通过揭示有姑息治疗需求儿童的护理人员的经历，为现有文献增添了内容。这项研究的结果不仅有助于定性方法的创新应用，也有助于有关儿科姑息治疗护理人员经历的临床知识和实践。
