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探索专业问题:基因组医疗中医学生物咨询的心理社会层面。

Exploring professional issues: the psychosocial component of genetic counseling in genomic healthcare.

机构信息

Liverpool Centre for Genomic Medicine, Liverpool Women's NHS Foundation Trust, Liverpool L8 7SS, UK.

Alan Phillips Associates, Lancashire, England, UK.

出版信息

Per Med. 2020 Jan;17(1):55-65. doi: 10.2217/pme-2019-0048. Epub 2019 Oct 10.

Abstract

To determine UK genetic counselors' (UKGCs) opinion regarding 'the psychosocial component of the UKGC remit in the new genomics era'. Facilitated discussions at a national conference (2016) using interactive methodologies (58 participants). UKGCs recognized the rapid rate of change emerging with advances in genomic science. Change will be required to the UKGC remit and the roles, rules, relationships and responsibilities that underpin it (29 topics identified). UKGCs supported their 'unique selling point'; integrating knowledge and the explicit focus on psychosocial aspects of genomic healthcare. By 2019, some of the aspirations have been achieved. UKGCs should proactively position themselves to capitalize on the challenges and opportunities of genomic healthcare to maximize patient benefit.

摘要

为了确定英国遗传咨询师(UKGCs)对“新基因组时代英国 GC 任务的心理社会层面”的看法。在全国会议(2016 年)上使用互动方法(58 名参与者)促进了讨论。UKGCs 认识到基因组科学进步带来的快速变化。GC 任务及其所依据的角色、规则、关系和责任将需要改变(确定了 29 个主题)。UKGCs 支持他们的“独特卖点”;整合知识和明确关注基因组医疗保健的心理社会方面。到 2019 年,已经实现了一些愿望。UKGCs 应该积极定位自己,以利用基因组医疗保健的挑战和机遇,最大程度地为患者带来利益。

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