Zhou Leming, Parmanto Bambang
Department of Health Information Management, University of Pittsburgh, Pittsburgh, PA, United States.
J Med Internet Res. 2019 Oct 25;21(10):e12981. doi: 10.2196/12981.
People with disabilities need rehabilitation interventions to improve their physical functioning, mental status, and quality of life. Many rehabilitation interventions can be delivered electronically ("digitally") via telehealth systems. For people with disabilities in underserved areas, electronically delivered rehabilitation interventions may be the only feasible service available for them.
The objective of this study was to evaluate the current status of digital interventions for people with disabilities in remote and underserved areas.
A systematic review was conducted on this topic. Keyword searches in multiple databases (PubMed, CINAHL, and Inspec) were performed to collect articles published in this field. The obtained articles were selected based on our selection criteria. Of the 198 identified articles, 16 duplicates were removed. After a review of the titles and abstracts of the remaining articles, 165 were determined to be irrelevant to this study and were therefore removed. The full texts of the remaining 17 articles were reviewed, and 6 of these articles were removed as being irrelevant to this study. The 11 articles remaining were discussed and summarized by 2 reviewers.
These 11 studies cover a few types of disabilities, such as developmental disabilities and mobility impairments as well as several types of disability-causing disorders such as stroke, multiple sclerosis, traumatic brain injury, and facio-scapulo-humeral muscular dystrophy. Most of these studies were small-scale case studies and relatively larger-scale cohort studies; the project evaluation methods were mainly pre-post comparison, questionnaires, and interviews. A few studies also performed objective assessment of functional improvement. The intervention technology was mainly videoconferencing. Moreover, 10 of these studies were for people with disabilities in rural areas and 1 was for people in urban communities.
A small number of small-scale studies have been conducted on digital interventions for people with disabilities in underserved areas. Although the results reported in these studies were mostly positive, they are not sufficient to prove the effectiveness of telehealth-based digital intervention in improving the situation among people with disabilities because of the small sample sizes and lack of randomized controlled trials.
残疾人需要康复干预措施来改善他们的身体机能、心理状态和生活质量。许多康复干预措施可以通过远程医疗系统以电子方式(“数字化”)提供。对于服务不足地区的残疾人来说,电子方式提供的康复干预措施可能是他们唯一可行的服务。
本研究的目的是评估偏远和服务不足地区残疾人数字干预措施的现状。
对该主题进行了系统综述。在多个数据库(PubMed、CINAHL和Inspec)中进行关键词搜索,以收集该领域发表的文章。根据我们的选择标准对获得的文章进行筛选。在198篇已识别的文章中,去除了16篇重复文章。在对其余文章的标题和摘要进行审查后,确定其中165篇与本研究无关,因此予以剔除。对其余17篇文章的全文进行了审查,其中6篇文章因与本研究无关而被剔除。剩下的11篇文章由2名审稿人进行讨论和总结。
这11项研究涵盖了几种类型的残疾,如发育性残疾和行动障碍,以及几种导致残疾的疾病,如中风、多发性硬化症、创伤性脑损伤和面肩肱型肌营养不良症。这些研究大多是小规模的案例研究和相对较大规模的队列研究;项目评估方法主要是前后比较、问卷调查和访谈。少数研究还对功能改善进行了客观评估。干预技术主要是视频会议。此外,这些研究中有10项是针对农村地区的残疾人,1项是针对城市社区的人群。
针对服务不足地区残疾人的数字干预措施,已经开展了少量小规模研究。尽管这些研究报告的结果大多是积极的,但由于样本量小且缺乏随机对照试验,不足以证明基于远程医疗的数字干预措施在改善残疾人状况方面的有效性。