Guldager Rikke, Willis Karen, Larsen Kristian, Poulsen Ingrid
RUBRIC (Research Unit on Brain Injury Rehabilitation Copenhagen), Traumatic Brain Injury Unit, Department of Neurorehabilitation, Copenhagen University Hospital Rigshospitalet København Denmark.
Department of Neurosurgery, Copenhagen University Hospital Rigshospitalet København Denmark.
Nurs Open. 2019 Jul 27;6(4):1314-1322. doi: 10.1002/nop2.326. eCollection 2019 Oct.
The aim of the present study was to identify possible facilitators and barriers that differently positioned relatives are facing when being actively involved in the rehabilitation process of patients with traumatic brain injury.
A qualitative secondary analysis of data from a qualitative study.
Data comprised participant observations and semi-structured interviews with relatives of patients with traumatic brain injury. Data were analysed using a qualitative content analysis.
Three exemplary cases illustrate how relatives' differential and unequal resources function as facilitators and barriers. Facilitators for involvement are as follows: participating in nursing care situations, the possibility for being present during hospitalization, the relationship with the providers, experience with illness, dedication and proactivity. Contrary, being reactive, non-participating in nursing care situations, unable to express own wants and needs, and minimal flexibility from workplace are barriers to involvement.
本研究旨在确定不同角色的亲属在积极参与创伤性脑损伤患者的康复过程中可能面临的促进因素和障碍。
对一项定性研究的数据进行定性二次分析。
数据包括对创伤性脑损伤患者亲属的参与观察和半结构化访谈。采用定性内容分析法对数据进行分析。
三个典型案例说明了亲属不同且不平等的资源如何起到促进和阻碍作用。参与的促进因素如下:参与护理情况、住院期间在场的可能性、与提供者的关系、疾病经历、奉献精神和积极性。相反,消极被动、不参与护理情况、无法表达自己的愿望和需求以及工作场所灵活性极小是参与的障碍。