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在世界上感到孤独——COVID-19 访客禁令期间患有神经系统疾病的患者的体验:一项访谈研究。

Feeling all alone in the world - experiences of patients with a neurological disease during a COVID-19 visitor ban: An interview study.

机构信息

Department of Neurology, Rigshospitalet, Copenhagen, Denmark.

Health, Department of Public Health, Research Unit for Nursing and Healthcare, Aarhus University, Aarhus, Denmark.

出版信息

Nurs Open. 2023 Jan;10(1):61-69. doi: 10.1002/nop2.1278. Epub 2022 Jun 21.

DOI:10.1002/nop2.1278
PMID:35730124
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9748115/
Abstract

AIM

The aim of this study was to explore how patients with neurological disease experienced a COVID-19 visitor ban and to identify ways of improving the quality of care.

BACKGROUND

In March 2020, a temporary visitor ban was introduced in Danish hospitals to reduce the spread of COVID-19. This led to changes in clinical practice, leaving patients without their loved ones beside them. Since neurological patients are already considered vulnerable due to physical, and sometimes cognitive impairment, we urgently wished to investigate these circumstances to facilitate appropriate support.

DESIGN

This study was conducted using a qualitative explorative design.

METHODS

Fourteen patients with neurological disease were interviewed using a semi-structured interview guide. Data were analysed through inductive thematic analysis.

RESULTS

For most patients, being hospitalized during the COVID-19 visitor ban was a painful experience with the potential to negatively influence both their mental and physical health.

摘要

目的

本研究旨在探讨患有神经疾病的患者如何体验 COVID-19 访客禁令,并确定改善护理质量的方法。

背景

2020 年 3 月,丹麦的医院引入了临时访客禁令,以减少 COVID-19 的传播。这导致了临床实践的改变,使患者身边没有亲人。由于神经疾病患者已经因身体上的,有时是认知上的障碍而被认为是脆弱的,因此我们迫切希望调查这些情况,以提供适当的支持。

设计

本研究采用定性探索性设计。

方法

使用半结构化访谈指南对 14 名患有神经疾病的患者进行了访谈。通过归纳主题分析对数据进行了分析。

结果

对于大多数患者来说,在 COVID-19 访客禁令期间住院是一种痛苦的经历,有可能对他们的身心健康产生负面影响。

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Life with Parkinson's Disease During the COVID-19 Pandemic: The Pressure Is "OFF".新冠疫情期间帕金森病患者的生活:压力“解除”。
J Parkinsons Dis. 2021;11(2):491-495. doi: 10.3233/JPD-202342.
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Stressors, Job Resources, Fear of Contagion, and Secondary Traumatic Stress Among Nursing Home Workers in Face of the COVID-19: The Case of Spain.面对 COVID-19 时疗养院工作人员的压力源、工作资源、感染恐惧和二次创伤性应激:以西班牙为例。
J Appl Gerontol. 2021 Mar;40(3):244-256. doi: 10.1177/0733464820964153. Epub 2020 Oct 7.
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Clinical presentation and outcomes of hospitalized adults with COVID-19: A systematic review.COVID-19 住院成年患者的临床表现和结局:一项系统综述。
J Adv Nurs. 2020 Dec;76(12):3235-3257. doi: 10.1111/jan.14558. Epub 2020 Sep 30.
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