Symvoulakis Emmanouil, Markaki Adelais, Rachiotis George, Linardakis Manolis, Klinis Spyridon, Morgan Myfanwy
Clinic of Social and Family Medicine, Faculty of Medicine, University of Crete, Greece
School of Nursing, University of Alabama at Birmingham, USA
Rural Remote Health. 2019 Oct;19(4):5241. doi: 10.22605/RRH5241. Epub 2019 Oct 30.
Behavioral determinants can enable or hinder motivation towards registration and donorship and, subsequently, action or inertia towards organ donation. Nevertheless, there is limited information about the role of self-efficacy in relation to organ donation awareness and presumed consent among individuals and their families. The aim of this study was to explore knowledge, attitudes and general self-efficacy as behavioral determinants for organ donation among rural primary care attendants, in order to tailor awareness strategies for reversing inertia within an opt-out system.
This was a prospective face-to-face survey during regularly scheduled appointments of 203 attendants at a rural primary care unit in northern Greece. Responses to a 12-item adapted 'Organ donation awareness' questionnaire measuring knowledge, attitudes and awareness were related to participants' General Self-Efficacy (GSE) Scale score. Hierarchical modelling of a multiple linear regression model was adopted with GSE score added.
About one-third of respondents (34.0%) had discussed presumed consent with a partner, family member or friend. More than half (54.2%) were concerned that donated organs might be used without consent for other purposes, such as medical research. A total of 30% found organ donation unacceptable because of religious beliefs. Organ donation awareness was not influenced by respondents' specific characteristics, but was significantly related to the GSE score (standard β=0.155, p=0.033).
Overall, organ donation perceptions among rural primary care recipients were determined by knowledge of the presumed consent procurement system, pre-conceptions, religious beliefs, altruism and GSE scores. The association of self-efficacy with raised awareness could potentially explain the gap between high intent to consent as a donor and subsequent lack of follow-up action. Further comparative research across behavioral determinants between rural/urban groups is needed in order to tailor awareness strategies suitable for an opt-out system.
行为决定因素可以促进或阻碍器官登记和捐赠的积极性,进而影响器官捐赠的行动或惰性。然而,关于自我效能感在个人及其家庭的器官捐赠意识和推定同意方面所起的作用,相关信息有限。本研究的目的是探讨知识、态度和一般自我效能感作为农村基层医疗服务对象器官捐赠行为决定因素的情况,以便制定提高意识的策略,扭转选择退出系统中的惰性。
这是一项前瞻性面对面调查,在希腊北部一个农村基层医疗单位对203名服务对象进行定期预约就诊时开展。对一份经过改编的12项“器官捐赠意识”问卷的回答,该问卷用于测量知识、态度和意识,与参与者的一般自我效能量表得分相关。采用多重线性回归模型的分层建模,并加入自我效能量表得分。
约三分之一的受访者(34.0%)曾与伴侣、家庭成员或朋友讨论过推定同意。超过一半(54.2%)的人担心捐赠的器官可能未经同意被用于其他目的,如医学研究。共有30%的人因宗教信仰而认为器官捐赠不可接受。器官捐赠意识不受受访者具体特征的影响,但与自我效能量表得分显著相关(标准β=0.155,p=0.033)。
总体而言,农村基层医疗服务对象对器官捐赠的看法取决于对推定同意获取系统的了解、先入之见、宗教信仰、利他主义和自我效能量表得分。自我效能感与提高意识之间的关联可能解释了作为捐赠者同意的高意愿与随后缺乏后续行动之间的差距。需要对农村/城市群体的行为决定因素进行进一步的比较研究,以便制定适合选择退出系统的提高意识策略。