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欧洲儿科肾脏病学会 1998-2017 年欧洲儿科肾脏保健研究:对比分析。

The European Society for Paediatric Nephrology study of pediatric renal care in Europe: comparative analysis 1998-2017.

机构信息

Research and Clinical Institute for Pediatrics, Pirogov Russian National Research Medical University, Taldomskaya St., 2, Moscow, Russia, 125412.

Children's Hospital, Hannover Medical School, Carl-Neuberg-Straße 1, 30625, Hannover, Germany.

出版信息

Pediatr Nephrol. 2020 Jan;35(1):103-111. doi: 10.1007/s00467-019-04378-5. Epub 2019 Oct 29.

Abstract

BACKGROUND

In 1998, a survey of the European Society for Paediatric Nephrology (ESPN) revealed substantial disparities in pediatric renal care among European countries. Therefore, ESPN aimed at harmonizing renal care in all European countries in the following 20 years. In 2017, we conducted a survey to evaluate the current status of renal health policies for children in Europe.

METHODS

A 33-question web-based survey was designed and sent to presidents or representatives of national societies of pediatric nephrology in 44 European countries.

RESULTS

Data was reported from 42 (95.5%) countries. The number of pediatric nephrologists per million child population increased from 1998 to 2017 in 70% of countries. Pediatric dialysis facilities for acute kidney injury and end-stage kidney disease were available in 95% of countries. The availability of pediatric kidney transplantation increased from 55 to 93% of countries. Considerable variation was found in the current availability of allied health professionals, including psychosocial and nutritional support, high-tech diagnostic methods, and treatment with expensive drugs for children with kidney diseases between different European countries.

CONCLUSIONS

The 20-year follow-up analysis of pediatric renal care services in European countries revealed that pediatric nephrology has become a well-established subspecialty in pediatrics and nephrology in 2017. The ESPN will continue its efforts to further improve pediatric renal care for European children by harmonizing remaining disparities of renal care services.

摘要

背景

1998 年,欧洲儿科肾脏病学会(ESPN)的一项调查显示,欧洲各国的儿科肾脏护理存在很大差异。因此,ESPN 旨在在接下来的 20 年里协调所有欧洲国家的肾脏护理。2017 年,我们进行了一项调查,以评估欧洲儿童肾脏健康政策的现状。

方法

设计了一个 33 个问题的在线调查,并发送给 44 个欧洲国家的儿科肾脏病学会主席或代表。

结果

来自 42 个(95.5%)国家的数据报告。在 70%的国家中,每百万儿童人口的儿科肾脏病医生人数从 1998 年增加到 2017 年。95%的国家都有儿童急性肾损伤和终末期肾病的透析设施。儿科肾脏移植的可及性从 55%增加到 93%的国家。在不同的欧洲国家之间,目前可获得的辅助卫生专业人员(包括心理社会和营养支持、高科技诊断方法以及昂贵药物治疗儿童肾脏疾病)存在相当大的差异。

结论

对欧洲国家儿科肾脏护理服务的 20 年随访分析显示,儿科肾脏病学在 2017 年已成为儿科和肾脏病学的一个成熟亚专科。ESPN 将继续努力,通过协调剩余的肾脏护理服务差距,进一步改善欧洲儿童的儿科肾脏护理。

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