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关于支持癌症患者及其照护者的双体网络干预的关键文献综述,以及未来研究的方向。

A critical literature review of dyadic web-based interventions to support cancer patients and their caregivers, and directions for future research.

机构信息

Wuxi Medical School, Jiangnan University, Wuxi, China.

Department of Nursing, The First Affiliated Hospital of China Medical University, Shenyang, China.

出版信息

Psychooncology. 2020 Jan;29(1):38-48. doi: 10.1002/pon.5278. Epub 2019 Dec 19.

Abstract

OBJECTIVE

With the rapid development of the Internet, e-health interventions are becoming popular and are showing positive impacts. Cancer affects not only patients but also their caregivers, leading to a recognition that cancer patient-caregiver dyads cope with cancer as a unit rather than as individuals. The objectives of this paper are to explore web-based interventions for cancer patient-caregiver dyads coping with cancer from the aspects of intervention content, delivery format, outcome measurements, and outcomes and to provide recommendations on developing patient-caregiver dyadic web-based interventions for future research.

METHODS

Literature focused on cancer patient-caregiver dyadic web-based interventions, published in English or Chinese from the launch of five databases (CINAHL, PsycINFO, EMBase, Medline, Science Citation Index Expanded) to April 2019, was systematically searched. Manual searching through the references of full-text articles was also conducted.

RESULTS

Of a total of 812 articles, 17 articles met the inclusion criteria. The content of these web-based dyadic interventions mainly included information support, communication and support, skills-building, and psycho-education. These web-based interventions reported a small to large positive impact on patients with cancer and their caregivers in terms of physical health (d = 0.17-0.75), psychological health (d = 0.04-0.80), overall quality of life (d = 0.20-0.68), and dyadic relationship (d = 0.30-0.95).

CONCLUSIONS

Web-based dyadic interventions can be designed for tailored content, which benefits both patients and their caregivers. Future research on cancer patient-caregiver web-based interventions should be conducted in diverse cultures.

摘要

目的

随着互联网的飞速发展,电子健康干预措施正变得越来越流行,并显示出积极的影响。癌症不仅影响患者,还影响其照顾者,这使得人们认识到癌症患者-照顾者对癌症的应对是作为一个整体,而不是作为个体。本文的目的是从干预内容、传递形式、结果测量和结果等方面探讨针对癌症患者-照顾者应对癌症的基于网络的干预措施,并为未来的研究提供关于开发患者-照顾者基于网络的联合干预措施的建议。

方法

系统检索了从五个数据库(CINAHL、PsycINFO、EMBase、Medline、Science Citation Index Expanded)启动到 2019 年 4 月发表的英文或中文的聚焦于癌症患者-照顾者基于网络的联合干预措施的文献,并对全文文章的参考文献进行了手动搜索。

结果

共 812 篇文章,其中 17 篇符合纳入标准。这些基于网络的联合干预措施的内容主要包括信息支持、沟通和支持、技能建设和心理教育。这些基于网络的干预措施在患者的身体健康(d = 0.17-0.75)、心理健康(d = 0.04-0.80)、整体生活质量(d = 0.20-0.68)和双边关系(d = 0.30-0.95)方面报告了对癌症患者及其照顾者的小到中等的积极影响。

结论

可以针对特定内容设计基于网络的联合干预措施,使患者和其照顾者均受益。未来关于癌症患者-照顾者基于网络的干预措施的研究应在不同文化中进行。

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