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特定神经功能障碍评估与认证指南的批判性评价

Critical Appraisal of Guidelines for Evaluation and Certification of Specified Neurological Disabilities.

作者信息

Puri Inder, Singh Govind, Acharya Rajendra Kumar, Goswami Divya

机构信息

Department of Neurology, Dr Sampurnanand Medical College, Jodhpur, Rajasthan, India.

Department of Physical Medicine and Rehabilitation, Dr Sampurnanand Medical College, Jodhpur, Rajasthan, India.

出版信息

Ann Indian Acad Neurol. 2019 Oct-Dec;22(4):373-376. doi: 10.4103/aian.AIAN_165_19. Epub 2019 Oct 25.

DOI:10.4103/aian.AIAN_165_19
PMID:31736554
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6839335/
Abstract

New disability law called "Rights of Persons with Disabilities Act 2016" has been acted in 2016. The United Nations' Convention for Rights of Persons with Disabilities is the sole of this new act. Of the total 21 categories, three new neurological legal disability categories such as chronic neurological conditions, Parkinson disease (PD), and multiple sclerosis have been notified first time in the new act. The new guidelines have been notified in the year 2018 for evaluation and certification of specified disabilities. As a new addition in these guidelines, modified Rankin scale score has been added to measure locomotor disability of stroke. Certainly, newer guidelines have many lacunae also. There are no recommendations of any method of disability measurement associated with movement disorders such as PD, chronic neurological conditions such as migraine, epilepsy, and ataxia. The tables of older guidelines for disability calculation in conditions such as unconsciousness and epileptic fits have been removed in newer guidelines. Professional bodies should come into action immediately and do effort for rectifying these shortcomings and/or fallacies in new guidelines.

摘要

名为《2016年残疾人权利法案》的新残疾法于2016年实施。联合国《残疾人权利公约》是这部新法案的唯一依据。在总共21个类别中,新法案首次公布了三个新的神经学法定残疾类别,如慢性神经疾病、帕金森病(PD)和多发性硬化症。2018年发布了关于特定残疾评估和认证的新指南。作为这些指南中的新增内容,改良Rankin量表评分被添加进来以衡量中风后的运动障碍。当然,新指南也有许多缺陷。对于帕金森病等运动障碍、偏头痛、癫痫和共济失调等慢性神经疾病,没有任何残疾测量方法的建议。新指南中删除了旧指南中关于昏迷和癫痫发作等情况下残疾计算的表格。专业机构应立即行动起来,努力纠正新指南中的这些缺点和/或错误。

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本文引用的文献

1
The rights of persons with disability bill, 2014: Implications for neurological disability.《2014年残疾人权利法案》:对神经残疾的影响
Ann Indian Acad Neurol. 2016 Oct;19(Suppl 1):S28-S33. doi: 10.4103/0972-2327.192884.
2
Internal consistency & validity of Indian disability evaluation and assessment scale (IDEAS) in patients with schizophrenia.印度残疾评估量表(IDEAS)在精神分裂症患者中的内部一致性和效度
Indian J Med Res. 2014 Nov;140(5):637-43.