CE：原始研究：1 型糖尿病患者的糖尿病倦怠体验：一项定性研究。
CE: Original Research: Experiences of Diabetes Burnout: A Qualitative Study Among People with Type 1 Diabetes.
机构信息
Samereh Abdoli is an assistant professor in the College of Nursing, University of Tennessee, Knoxville, where Amit Vora is a clinical assistant professor in the Graduate School of Medicine. Danielle Hessler is an associate professor in the Department of Family and Community Medicine, University of California, San Francisco. Betsy Smither is a project manager at Oak Ridge Associated Universities, Oak Ridge, TN. Heather Stuckey is an associate professor in the Departments of Medicine, Public Health Science, and Humanities at Pennsylvania State University, Harrisburg. This study was supported in part by an unrestricted grant from the Beryl Institute. Contact author: Samereh Abdoli,
出版信息
Am J Nurs. 2019 Dec;119(12):22-31. doi: 10.1097/01.NAJ.0000615776.64043.be.
BACKGROUND
People with type 1 diabetes are at increased risk for diabetes burnout, resulting in suboptimal diabetes care and quality of life. While the existence of diabetes burnout is widely acknowledged, there is no evidence-based definition, means of measurement, or interventions to address it.
OBJECTIVE
This study was aimed at increasing our understanding of the lived experiences of diabetes burnout among adults with type 1 diabetes.
METHODS
A qualitative descriptive study was conducted with a sample of 18 adults with type 1 diabetes who reported a current or previous experience of diabetes burnout. Data were collected using in-depth interviews and analyzed using qualitative content analysis.
RESULTS
Four main themes were identified: mental, emotional, and physical exhaustion from having diabetes; detachment from illness identity, diabetes self-care, and support systems; contributing factors to diabetes burnout; and strategies for preventing or overcoming diabetes burnout.
CONCLUSION
Although exhaustion is an entry point for diabetes burnout, the findings suggest that detachment from illness identity, diabetes self-care, and support systems form a core component. Detachment may explain poor outcomes in individuals experiencing diabetes burnout.
背景
1 型糖尿病患者发生糖尿病倦怠的风险增加，导致糖尿病管理和生活质量不佳。虽然人们普遍认识到糖尿病倦怠的存在，但目前还没有基于证据的定义、测量方法或干预措施来解决这一问题。
目的
本研究旨在增进我们对 1 型糖尿病成人经历糖尿病倦怠的理解。
方法
采用定性描述性研究方法，对 18 名报告目前或过去经历过糖尿病倦怠的 1 型糖尿病成人进行了研究。使用深入访谈收集数据，并采用定性内容分析进行分析。
结果
确定了四个主要主题：糖尿病带来的精神、情绪和身体疲惫；与疾病身份、糖尿病自我护理和支持系统的脱节；导致糖尿病倦怠的因素；以及预防或克服糖尿病倦怠的策略。
结论
虽然疲惫是糖尿病倦怠的切入点，但研究结果表明，与疾病身份、糖尿病自我护理和支持系统的脱节构成了核心组成部分。脱节可能解释了经历糖尿病倦怠的个体不良结局的原因。
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