Department of Surgery and Cancer, Imperial College London, UK.
Imperial Vascular Unit, Imperial College Healthcare NHS Trust, London, UK.
Ann Surg. 2021 Dec 1;274(6):e1030-e1037. doi: 10.1097/SLA.0000000000003730.
SSMD are used to enhance transparency, improve quality and facilitate patient choice. The use of SSMD is controversial, but patients' views on such data are largely unknown.
The aim of this study was therefore to explore the views of patients and to identify their priorities for outcome reporting in vascular surgery.
A prospective questionnaire study of 165 patients receiving care in a single academic vascular unit was performed. Data on patients' current understanding and use of SSMD, together with future priorities were collected.
Of the 165 patients 80% were unaware of SSMD. 72% thought they should be made aware of the data, although 63% thought they were likely to misinterpret the results. The majority recognized the utility of SSMD to inform treatment (60%) and surgeon (53%) choice. The majority prioritize the patient-surgeon relationship (90%) and past experiences of care (71%) when making treatment decisions. A significant majority (66% vs 49%; P < 0.005) would favour hospital-level to surgeon-level data. The main patient priorities for future outcome reporting were waiting list length (56%), the quality of hospital facilities (55%), and patient satisfaction (54%).
The aims of SSMD reporting are not currently being met, and both patients and healthcare professionals have shared concerns over the nature and usefulness of the data. Patients express a preference for hospital-level outcomes and prioritize the experience of receiving care over outcomes when making treatment decisions. Future outcome reporting should include patient-directed hospital-level metrics that are readily accessible and understood by all.
SSMD 用于提高透明度、改善质量并促进患者选择。SSMD 的使用存在争议,但患者对这些数据的看法在很大程度上尚不清楚。
因此,本研究旨在探讨患者的观点,并确定他们对血管外科学结局报告的优先事项。
对在一个学术血管单位接受治疗的 165 例患者进行了前瞻性问卷调查研究。收集了患者对 SSMD 的当前理解和使用情况以及未来的优先事项的数据。
在 165 例患者中,有 80%的患者不知道 SSMD。72%的患者认为他们应该了解这些数据,但 63%的患者认为他们可能会误解结果。大多数患者认识到 SSMD 可以用来告知治疗(60%)和外科医生(53%)的选择。大多数患者在做出治疗决策时优先考虑医患关系(90%)和过去的护理经验(71%)。绝大多数患者(66%比 49%;P < 0.005)更倾向于查看医院层面而非外科医生层面的数据。未来结局报告的患者主要优先事项是等待名单长度(56%)、医院设施质量(55%)和患者满意度(54%)。
目前尚未达到 SSMD 报告的目标,患者和医疗保健专业人员对数据的性质和有用性存在共同的担忧。患者表示更倾向于查看医院层面的结局,并在做出治疗决策时将接受治疗的体验置于结局之前。未来的结局报告应包括患者导向的、易于获取和理解的医院层面的指标。